Here's my suggestion...I heard and learned a great deal about T1 from my family as I was growing up. When my mother found out I was T1, her response was to read voraciously; in turn, because of her, I did as well.
I knew a heap of information about management, dosages, insulin, maintenance, you name it.
However, I had no idea about the costs of T1. I had no idea about how significant insurance was, or how hard life could be without adequate coverage. I knew next to nothing about community resources that protect T1 people. I didn't know about how to deal with the worst case scenario.
When the worst case came, however, I was ready. I had the love of my mother and her perseverance to light my way through panic, anger, fear, rage, sickness, more fear, and then, finally, relief.
I think it might be a good idea, once a T1 kid is of age...I don't know exactly when...but before they leave high school, or when they are in the middle of college, or even before...to walk the young adult T1 people through the hoops, or have someone who has been there do it.
For instance, here are some what if situations to prepare young T1 people for:
what if your insurance raises your deductible from something affordable to something that makes it so that you can't get insulin?
how do you plan for a protect yourself against medical bills
how do you file a claim with your insurance company
how do you cope emotionally with the sudden, very painful, realization that no one cares that you are on life support, and no matter how much it costs, you are forced to keep taking it?
It's not that I didn't know about insurance or money or theory, but the thing that really took the wind out of me was that I had taken so much for granted. Sure, of course I will always have insulin and employment. Sure, health insurance will always be there. Sure I'll always be able to afford everything.
There should be some preparation for the worst case--not in a panicked way, or a fear-based way, but in a real world, here's the issue and here's how to overcome it way.
Basically, I guess I am suggesting a survival talk--at least one if not several. Knowledge is power.