Diagnosed at 49 about 18 months ago. Daughter of a 18 year old Type 1 who was diagnosed 7 years ago. When she was diagnosed, I was tested and had GAD65 antibodies, but no diabetes symptoms at the time. There are some LADA groups on Facebook if you want to chat and learn more. I recommend this one:
I live in Australia, but the Facebook group is a global one.
Not using a pump. HbA1c is 6.4% at last endo visit. I am running 50km (30miles) per week and experimenting with insulin and carbs has been a pain, but seem to be on to a regime that works for me now. Doing a triathlon series next summer. Switched to an almost Paleo diet (high protein, low carb) which has helped a lot. Still doing pens. Levemir morning and night, Novorapid and carb counting at meals.
My thyroid hormones are a bit suspect and my iron levels are a bit high. Things for me to watch.
Good luck with the journey. My own experience has taught me a few lessons:
- Read - you will end up knowing more about your diabetes than your endo. Gary Schneider’s book “Think like a pancreas” is a must-read for you, particular as he is an exercise physiologist with Type 1.
- Experiment - don’t be afraid to adjust your insulin doses and see what happens (but test often when you do), particular if you exercise a lot. Become friends with gels, energy drinks that the cyclists use. Great for quickly topping up blood glucose during long exercise periods.
- Don’t be afraid of carbs and combating with insulin. I see so many T1s struggle with an ultra-low carb diet to keep their insulin use very low. They sound soooo miserable. Life is too short not to have chocolate and cheesecake once in a while.
- Educate your friends and family. You WILL have a low one day that will require assistance from others. Make sure they know you are diabetic and to intervene at the first sign you start behaving strangely.
- Be careful around alcohol. I used to drink a fair bit, but feel very ill if I drink too much anymore. It also plays havoc with your blood glucose control.