I started an odd "side journey" about a week and a half ago. It made me think of something that had been at the back of my mind for years: Cystic Fibrosis. Why has this been on my mind? I have had asthma all my life. I've had some really bad years and some really good years. I've had sinus issues chronically and had to have sinus surgery in 2008 (which was one of the best decisions ever). I have had unexplained infertility and abdominal/intestinal issues. I developed type 1 diabetes at age 27.
So a week ago Monday I was on Facebook getting an update on my h.s. friend's 2 year old who has CF. I remarked to my husband, how unfair this perfectly beautiful child would have such a shortened life (as in the 90s I remember hearing the CF life expectancy was til early 30s). Then I caught myself...and thought...actually I haven't heard much about CF in years and maybe research has afforded a longer life span. So I googled CF and found the Cystic Fibrosis Foundation and stumbled immediately into forums. I clearly didn't understand the disease and immediately found postings from people who were diagnosed AS ADULTS. So I thought HOW ODD especially since my mom repeatedly said I was such a sickly child with so much mucous they thought I had CF but the doc just said to pat me on the back a bunch and I'd be fine so they never pursued any testing (and this was military docs in Alaska). So I called my mom after I found these articles and learned that adult onset diabetes can be caused by CF and YES you can be GAD antibody positive if you have CF caused DM!!
1 Signs and symptoms (all these things I have issues with)
Anyone have this or suspect they may have it? I talked to my PCP and we decided it would be a long shot but that I could have CF in a milder form and that I'd want to know before I decided on having children. I have my sweat test tomorrow! I'm nervous now because this could be the WHY for everything I've ever had....what a weird idea that it could be all based on this one thing that my mom had a gut instinct about all those years ago before they tested newborns...