The longer he has diabetes, the worse his management of both his supplies and his disease get. I cannot even try to get anything across to him about the disease until we go to the endo in a few weeks and he sees his A1C. But the supplies! We try and try to help him and give him all the tools he needs to keep it all organized and together, but he doesn't see any of it as important. Earlier this week, his father made him put everything he'd been carrying supplies in on the kitchen table and clean it all out. His school backpack was filled with used needles and test strips strewn about. How many open bottles of test strips were there? 12. We keep the main stock of suppiies in the top of my husband's closet and the child is supposed to ask when he needs more needles/strips/whatever, but he just goes in there anytime he wants. It's not a matter of getting what he NEEDS. It's a matter of getting supplies because he doesn't want to bother finding where his current supply of test strips or needles is.
I guess none of this is as important as the number of times he cannot find his insulin and we have to tear up the place looking for it. Yes, we've tried to establish one place in the house where he gives shots. He won't do it. The worst was just now. He'd given humalog last night on the way home from studying at the library because he and his dad picked up food on the way home. So where was the Humalog this morning? In the car. How cold is is right now? 10 degrees F. (that's -12C).
I tried so hard to keep my cool this morning and I did not succeed. He's right in the middle of semester exams. But his walking around the house nonchalantly whistling (to keep himself calm) when he's just ruined a bottle of humalog sent me over the edge. And I'm supposed to send him off on ski trips the next three weekends? And I'm supposed to send him off to dance camp for six weeks this summer? And I'm supposed to keep all this inside without talking to anyone at the endo office about it because it might affect his chances of getting a pump? And do I punish him because he has diabetes? It's not about me, but then am I an "over-protective" parent because he won't act like this disease is the most important thing in the world?
If it were anything but THIS, we' d let natural consequences take over. But the natural consequence of ruining your humalog out of total carelessness would be to do without it for the rest of the month. When he cannot find it, the natural consequence would be for us to not help him, but then he would get to the point where he would either not eat, or more likely, start a habit of eating without insulin.
I just don't know where to turn. And no, there are no local support groups. I'm a total crying wreck and now must head to work.