Good morning everyone. I know this will be a bit heavy for only my second post and apologize ahead of time. I just need to put it all out there to people that understand and can get my concern.
So my daughter Chasey is 6 and in grade 1. This is her second year at the school is attending and she has the same teacher that she had for K. She found out in March of 2009 that she was diabetic and started on her minimed pump in October of last year. She was in preschool when we found out and the teacher was amazing. They were very supportive and encouraging and understanding.
Fast forward to K and things were bumpy and we were told that's normal, it's an adjustment period etc etc. The school and nurse also told us that it was hard for the teacher to monitor Chasey since they only saw her for about 2 hours a day. Fine, we made it through the year.
We went in the beginning of September and worked out a care plan for Chasey for this year. I thought it went well. We met in the middle on a lot of requests that I had so I thought we were off to a good start. Well that was until Chasey started having lows and I mean like half a dozen in a two week time span. Prior to her going back to school her numbers were great, which is a real accomplishment. It's not the lows so much, I was expecting a few with the adjustment, also our school has the eat first, play after policy. So I knew we were going to have to adjust her food intake and insulin levels.
The part that I am having a problem with is the fact that no one caught the lows and they went untreated for who knows how long. The school has to check her at 10:05am for snack and 12:25pm for lunch. The lows were happening before lunch and were going untreated until her scheduled testing time. So I have no idea how long she wasn't well for before they tested. Chasey's support staff is ill right now so they responsibility has fallen on me to go to the school to test and everything. The one day I showed up she was 2.7 and I was there 15 minutes early, thank goodness. The really scary part of that day is that a mother of another diabetic child in Chasey's class told the support worker that something was wrong with Chasey and she needed help and they did nothing. They didn't treat with sugar, call me or ask the other mom for help.
Then on Thursday night we had our parent teacher interviews at school and found out that the teacher has just been giving Chasey sugar tabs throughout the day, for no reason. She didn't suspect a low, she just thought that it was a good idea to give them. So we called the doc and had her levels changed but who knows how valid the numbers are with the school just doing whatever they want. Also the teacher told us that she is totally overwhelmed with the class and that she can't watch or understand lows.
I tried repeatedly to talk to the principle and she never had time. So after finding all this out on Thursday, I tried to get ahold of the principle on Friday which was a Pro d day so I knew she was there and she wouldn't get back to me so I went and sat at the school until she would schedule an appointment with me. The she was stand offish and short with me. She claims she can't see me until Wednesday and this is even after I told her that I was pulling Chasey out until we had a meeting.
Since the beginning of school and the start of these problems, I have been phoning the ministry of education and the head of nursing support staff to report the issues and lack of support. So now they are involved and I'm upset that it is taking the school so long to respond to their obligations. Both people that I have spoken to assure me that this is a basic safety issue and it's smart to keep Chasey home until it's resolved. But I feel like I'm punishing her. That was until last night when she told me that she is scared to go to school, because sometimes she gets confused and no one helps her.
So I guess I just want some reassurance from people that understand or some suggestions on how to better safe guard Chasey when she is around clueless people. Am I being overprotective, am I asking too much of the school?