I do not know if I can be of help, and I came to your post looking to find connections between the 2 conditions myself, for I wonder at times if my lymphedema negatively effects my blood glucose levels and if high blood glucose levels alters my lymphedema control. I perceive there is a fine balance and they are interrelated.
I have had secondary lymphedema for 19 years and developed Type 1 DM 17 years ago. I perceive both are a result of the three surgeries I required at that time. Of course, I know the lymphedema was directly connected. I have used an insulin pump since 1999 and could not imagine life without it. One only needs to change the pump site every three days, and with each puncture of the skin, you are risking increasing the swelling of lymphedema and the potential of developing cellulitius.
I also am an occupational therapist and was one prior to developing all of these conditions - yet only recently, about 16 months ago, completed training for complete decongestive therapy and became a certified lymphedema therapist. I was not satisfied with the therapy I received for my lymphedema and decided I could and should become a certified expert myself. My major advice is to treat the lymphedema with compression bandages, using open cell foam under the bandages etc. and have back up compression devices on nights everyone is just too tired to wrap.
One thing I am obsessive about is my skin care - for it is the fine trigger that can impact everything. I have never had cellulitis and continue to work to understand the best ways to help myself with both diseases. I have only once reached that magic place of an A1c below a 7, for most of the time I am between a 7.3 - 7.8 A1c - so I cannot say I am the greatest role model, yet I work daily to manage both conditions -- and for those actions I take pride -- for it is a road with many stones in one's way. My endocrinologist has this quote on her exam wall -- and I come back to it many times when I wonder about the time and energy of it all. Best of luck to you and your son as your daily actions are the best way to assure he can live life to his fullest. Thanks for posting, your words motivated me to reach out for the first time ever and share a bit of my story. - Laura
“Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying,
"I will try again tomorrow.”
- Mary Anne Radmacher