Ok, so 9 mo's ago I had thryoid surgery to have the left side removed due to a growth developing on it(which made it the size of a golfball) which was found out later that it is throyid cancer. Was told by surgeon(ear, nose, throat dr.) that there would be no changes to me & it wouldn't affect my D, but since this surgery in June I have had nothing but problems. The 1st thing I noticed is that my internal warning system for low's no longer worked and now all I get is a headache(so bad I think someone is trying to drill into the back of my head) and a very nauseaded stomach and neither of these systoms happen until my BG is in the 1 range.
I've been a T1 for 14 yrs now & in that time I've never been rushed to the er or had to have ems called for me EVER, but since I've had the surgery I've had to be rushed to the ER 4 times or I've had to leave work b/c a low & left to have some time to recoup 5 times or I was feeling like BG was high and when I tested my BG was 3 or lower. The last low that I had at work ems sent 2 ambulances for me, the next day my family dr put me on short term disability until we could figure out why all of these lows are happening and was that I can't drive or take the bus by myself & I wasn't to go out by myself or even go for a walk my dog by myself so I've been riding my couch for the past 1 mo 1 week & I'm so bored and getting depressed everytime I think about all of these things.
So 2 weeks ago I saw a new endo that lowered my basal rate from 1.05 u/h to 0.85 u/h & had a meeting today with a new pump trainer to help with seeing were changes needed to be made with my other #'s & my BG target for my pump from 5-7mmol/l to 6-7 mmol/l & the pump trainer wants me to start using temp basal rates. For the past 6 yrs that I've been using a pump I've never used temp basal rates!! This is embarassing to say that they were never explained to me & the reason to use them wasn't made aware to me. So now this pump trainer wants me to use 2 temp basal rates so the 1st temp basal rate is set to reduce my u/h 50% for vigours activity & the 2nd rate is to reduce my u/h 30% when doing lite activity(non strenous housework, 20 min dog walks). I guess my question is why are temp basal's so important ? I just thought during strenous activity we should be taking off our pumps then after the activity connect & test as usual or am I ill educated on the subject?????
I guess that I'm trying to gather as much info about to help me get back to me cause I can't stand the way I've been feeling, like "I'm sick but not sick" and it feels like for all of these yrs everything I thought I knew about D & T1 wasn't near enough for me to take proper care of myself so I question how I have been taking care of my D?????????