My son's been too busy to step onto Juventation lately, so I'll respond for him. We "argue" over who knows more about diabetes, he or I. He, of course, lives it. He feels it. He manages most of it. He carb counts breakfast and lunch. If someone else counts the carbs, he does the math for the carb ration.
My husband and I both spend three days in the hospital with him learning everything along side of him. We all have to give him shots before he could leave the hospital. Since the hospital, my son gives all the shots, save one more from my husband, 2 from a friend, and 1 from another friend.
I've read Type 1 Diabetes for Dummies; The Discovery of Insulin; and Think Like a Pancreas. I read tons of news stories, websites, pamphlets from the hospital and juvenation. I have the book knowledge. I'm the one who asks most of the questions at endocrinology appointments. I do most of the cooking and therefore carb counting for supper. I handle getting supplies and prescriptions. And I think I take on the lion's share of any worrying.
My husband has a shelf in a closet where he manages all the supplies and prescriptions. My husband has a knack for wild-ass guessing carbs when there is no information to go on. He was a pro on a vacation in Munich in August and Aaron's numbers were great.
The 13 year old brother understands a lot of it. He WANTS to give his brother a shot, but his brother won't let him.
My son's friends are learning and interested. He has the greatest group of friends. When I recently commented how much I appreciate them and related that some teens on juvenation have problems with their friends because of diabetes, the friends were puzzled why that would be. They are very accepting and realize that my son is still the same person he's always been.
The dance instructor is in denial, although she got a dose of reality the other night when he went into the 50s and took a long time to climb out. He had to sit out a lot of dance that night because he felt weak and dizzy while low. After class she came up to me about in tears, saying, "I hate diabetes." Welcome to the club.
The real gap is the grandparents, although they all live 10 hours away. My mother-in-law is open-minded and wants to learn. She read The Discovery of Insulin (just because it sounded like a great story) and is now reading the dummies book. She went on the Munich vacation with us, so saw the blood checks, carb counting/guessing, insulin shots in action. My parents, who have both been type 2s for years, are stubbornly ignorant, sending my son sugar-free candy and things like that. She sent some animal crackers recently (my kids aren't five year old anymore, don't ask me why she sent those) and highlighted the grams of sugar on the box, even though I've told her many times that it's the carbs that matter. They haven't seen him since diagnosis, so Thanksgiving and Christmas will be interesting. They are horrible type 2s who remain grotesquely overweight and inactive. My mother would be the type to try to talk Aaron into handling his diabetes differently if we weren't around, because she feels like she knows better and likes to feel in control of my kids when I'm not around. I have the feeling I'll be around when she is!