Thanks for the responses! I did have an accident about 10 years ago - auto slammed into my parked car - and suffered tremendous pain in my neck only to find that I had herniated disks at c4 and c5. After about 8 months of PT, pain meds, and still in much pain ... it stopped hurting. the neuro wasn't happy, but I decided surgery not needed. It never bothered me again. 2 recent MRI's show the disk is retracted, so there is "no relationship" to the FSS (frozen shoulder syndrome). From what I have gathered, there is no good reason why this happens, but it happens to diabetics often, women, and people who have had upper body surgery.
So, the muscles around the shoulder form scar tissue and the shoulder becomes inflamed - so much for moving it. Unfortunately, I think I have done all I can ... I have had 5 injections - and yes -CRAZY HIGH BG's! They don't want to give more shots as they believe it will destroy the tissue in the shoulder. The nerve blocks only work for about a month or two, the last one only a week. Now I am trying to deal with the pain ... it's constant. I can't "play with my kids very well, standing too long weighs on the shoulders and it becomes painful - so I'm off to see what pain management will do ..
I've had a couple minor surgeries in the past - I just don't think that this will turn out too well. They plan to release the should capsule, scrape out some bone to give more room and they can't do anything for the scar tissue - so right after surgery you go into PT for 30 sessions (least I'm covered) -- but I have been warned that the surgery only gives me a chance to break the scar tissue, and if I don't plan on being super hero, the area will scar move with less motion and possibly more pain. Then, if all is successful, shoulder #2 ... That puts me out of action for 5 months! S**t.
I don't know if this is T1 related or not - it just could be life. It's easy for me and my wife to blame it on T1 ...
Anyway, I lived in France so 20 years ago. I was very please that people with "disabilities" that were not of their own doing received FREE everything. I did not pay for meds, dr's, and I was put at the top of the list for care. They even made house calls when I got a bad cold! For the sake of all the people who have illnesses that create another FT job in life, it would be nice to know that you are covered for insurance. Most of my adult life, while successful and fun, was about having insurance -
That was my rant for the moment!!