Been split up with my ex husband for over 3 years and have had to fight the circuit court to order him training on our 8 year old son. He did half of it but blatantly refuses to finish. He rambles on like he knows what he needs to do but when questioned in detail he has no clue. He does not support my son having an insulin pump or Dexcom G6 and tells people I’m just lazy. It makes it so much easier & faster for the school nurse, caregivers and such as well as lowered his A1C to the lowest it’s ever been. Anyone else ever have this issue?!? I’m at my wits end…
Has anyone else dealt with an ex spouse who does not feel your T1D child is disabled or needs an insulin pump?
hi @Cedgar1984 Courtney, welcome to TypeOneNation.
I am sorry, no, I don’t - I have not had this issue. I have to admit, I had to read this a couple times to get what you are saying, so if I may repeat, your son wants a pump but your ex doesn’t support paying for it? or am I getting it wrong - your Son has a Pump and a CGM, but you want your ex to appreciate it?
if it’s the first one, and in my opinion, if your son would wear one, then just get it. you don’t need permission.
if it’s the second one… I have less interesting feedback, but sometimes, you are just not going to agree on a concept, and I find my life is much happier when I don’t give a darn what other people think.
hope you are ok.
Lol. It’s more so the second but he’s made it clear that he does not believe our son is as diabetic as he is. He does not think he needs a pump for continuous insulin.
Hi Courtney. So sorry to hear what you are going through and I hope your husband becomes more supportive over time.
I don’t mean to add to your burdens (if I may use the term) but I would like to suggest you be careful with the word “disabled” around your son. “Disability” is defined as “a physical or mental condition that limits a person’s movements, senses, or activities;” and for purposes of school and employment diabetes can be identified as one to ensure arrangements can be made for - in this case - such things as getting snacks, eating lunch or stepping out to use the restroom even if it’s not “break time.”
I’ve had jobs where new hires were given the option of identifying as having certain conditions for disability purposes so they could ensure arrangements were made. I didn’t feel it was necessary in my case although others may have chosen to do so.
There used to be a slogan “disabled doesn’t mean unable,” but unfortunately the term “disabled” still carries negative connotations.
Hopefully your son will be able to do the same things as his friends, albeit with some adjustments, so he won’t feel he is missing out on life.
I get this all too well! My ex actually enforces a low carb to no carb diet on ours daughter because he doesn’t think she should be using insluin to control her t1. She only receives her lantus. I actually posted a big long thing about her recent weekend there and her constant lows. Anyways he too called it pure laziness to put her on a pump, makes this a “my numbers are better than yours” dude this isn’t about us!!! It’s not a you vs me! It’s a let’s help our daughter manage this thing! Let’s work together to keep He alive and healthy! I know the frustration you’re going through.