Wow. I just got an amazing email from Aaron's dance instructor. (I'm an unofficial volunteer very part-time manager for the studio, so the director and I shoot email back and forth all the time.)
Background: Most of you know----my 16-year-old son was diagnosed T1 a year ago. He is a dancer. In fact, this year, he takes more classes (7 plus one as a teaching assistant to 1st graders) that anyone at the studio and will be performing in 9 out of 11 pieces in the recital next weekend.
The director is finally getting it about how hard my son works at being a dancer with T1. Last year when I tried to talk to her about issues regarding T1 and the recital, it was as if she put her hands over her ears and went LALALALALA out loud. She couldn't be responsible, she couldn't think about it, etc. It wasn't that she didn't care. She's worked with my son since he was five years old and hand picked him to be a class assistant for the past three years. She cared too much and couldn't process. She's also artistic/flighty--if you know what I mean.
We've been talking about recital because the recital this year is such that he can barely handle costume changes---no time for blood sugar checks, juice, etc, except at intermission (one hour/intermission/one hour). We talked to the endocrinologist at check-up today about blood sugar goal for preshow, etc. The dance director and my son decided that except right before intermission and right before the last number, he won't take curtain calls. He's very cool with that.
Then I get this email from her just now:
"....When that dance is over, I will call all the men of the studio out onto stage to recognize them. This will give the girls of that last piece a chance to change their costumes. Also, Aaron has said it's ok to recognize him as the person in the most dances. He also says it is ok to speak about diabetes. I need help from both of you to prepare comments that would be appropriate--raise awareness and help educate and at the same time, recognize Aaron for what he's doing."
Wow! It's amazing that she is asking for this. But I don't know what to say. (I'm exhausted from the big one-year check-up today plus three hours of driving.) He takes more classes than anyone. Obviously isn't held back or limited by his diabetes. Yet, must work even harder to keep his body in diabetic shape for dancing. Must work to have blood sugar at certain levels for the demands of class by counting the carbs of everything he eats. Has learned to listen to his body to keep himself safe. Taken responsibility to care for his blood sugar as needed. Must prick his finger and check his blood sugar before, after and every hour of dance, plus any time something doesn't feel right.?????????
I don't know how much she wants to say. What to say? Concisely? And strike that balance of not boring people but creating a little awareness of T1 demands. So please, make suggestions of eloquently written sentences that would sound good from the stage.