I just found out about this forum from the local JDRF posting on Facebook and I'm so happy to find this place!
I tend to be wordy so please forgive me in advance ;)
My name is Crystal and our son Jonas was diagnosed on August 28th, 2010, right before he turned 4 in October. He was very sick, but we didn't realize it. His leg cramps = growing pains. His peeing the bed like crazy = newly potty trained and drinking a lot due to being excited about the potty. He looked thinner but he was 3... he was losing his baby fat. Crabby a lot but again... he was a 3 year old boy! Didn't occur to us that he was sick. Then one night he was throwing up and we thought he had a belly bug. I knew something was off because of how crabby he was, thought he was just sick. Next morning I noticed that he had that dehydration indentation on his ribcage, and was confused since he was SO thirsty all the time. We had to cut his water at night because he was waking up with his sheets and clothes covered in urine. When he was trying to talk to us... we noticed his breathing was labored. Scared the life out of me! Hubby took him to urgent care and then called to let me know he was taking him to Children's Hospital because his blood sugar was 531. I don't remember any of his other numbers... it's all a blur now.
The poor kiddo... all he wanted was crackers. 3 graham crackers, that's all. He would cry and cry that he was so hungry but they wouldn't feed him yet until his numbers came down. It was heartbreaking. He was so little.
The first month home was hard. He had been told forever now that he could have as much food as he wanted if it was fruits and veggies, now I was telling him he couldn't have it. He was only 3... it was hard for him to understand. It didn't take long for him to get used to the lingo, but boy, it was SO nice when we were allowed to adjust the insulin according to what he wanted to eat.
We've run into typical issues with him. We had people walking past our house at the wrong time and would hear us yelling at him to eat his food because we had just dosed him for 75 grams of carbs and then he went and decided he wasn't hungry. Ahhhh. So we were freaked out that he was going to crash and so we would yell at him to eat. Our first month was sooooo scary. I swear we had our on call Endo on the phone with us more than anyone else. lol Tons of high numbers while we were adjusting. Finally he went into honeymoon and is still there now. The last two months have been nice for the most part.
We did have a few days last week where he was high a lot. Called the endo for the first time in a while. I believe he was sneaking candy canes though since there was one stuck to his new blanket. Then we were wondering why he was low a lot... until we found out that he was hiding his plates of food in his play kitchen.
Overall we have all been dealing with it very well. I don't freak over high numbers as much as I used to. We just go with it and try to figure out what went wrong. Sometimes there isn't an answer. We give a lot of water because we find that we don't push it as much as we should.
He's an amazing trooper and we love him so much. I get sad when I realize that he will never be able to pay for health or life insurance at reasonable rates and I just pray that he gets a good job ... sucks to think of suck things. He's only 4.
We are bad about contact with the endo though. This has been a rough semester... hubby and I are both full time students and Jonas' readings have been SO great that I kind of forgot that I was supposed to be sending his readings to his nurse once a week. Forgot to set up his Day 3 education clinic and he hasn't been back for another appointment. I will be fixing this in the next couple of days, but I hope they don't yell at me. I feel like a failure as a Diabetes parent but i hope I'm not the only one.
His stats if anyone is interested is... he is on 2 units of Lantus, we correct after 150 and he takes 1 unit for every 25 carb grams. He averages about 2.5 units a meal. I miss our pen cartridges that we got in a pretty Lilly pen at a clinic. Our script was for Humalog disposables and don't dose 1/2 units, which is annoying.
Well that's enough from me I guess. I'm looking fwd to meeting you all!