My son was diagnosed over a year ago and will be going into 1st grade in the fall. He is still honeymooning on a regular basis and I am so scared to send him to school. It was easier last year, he was only in 1/2 day kindergarten. Now, I need to write a 504 and describe the honeymoon to the school staff, knowing that he will have lunch and then recess, with the chance for his pancreas to be working after his injection for lunch. How do you direct the school staff about the honeymoon and that if you give an injection and the pancreas decides to work that day, that for the next 2 hours until the injected insulin peaks, he will need to be tested and given snacks almost every 20-30 minutes. Also, he would not let the school nurse give him his shots last year, so if he needed one, I would have to go to the school. I don't mind going to the school, as I don't work right now, but any advice on sending a child that is honeymooning to school would be appreciated.
Thanks, Mom of RJB
I am not so concerned about the lowered insulin need. Here is an example of what our honeymoon is: before lunch his numbers are 250, he eats 50 carbs, his carb ratio is 1/25, so he gets 2 units of fast acting insulin. Within 5 minutes of his injection he feels low and I check his numbers again and he is 62, so for the next 2 hours, I am fighting the low that will come from the injected insulin until it peaks. He was low due to his pancreas working for this meal, the injected insulin has not even entered his system yet. He has 24 hour insulin in his system too, so his low could be significant if not caught. Has anyone else experienced this. We have this happen at least once a week. We also have the days where he gets zero fast acting insulin. So, I do understand the reduced insulin, but it is the episodes of the pancreas producing insulin for a meal that I am concerned about.