I'm newly diagnosed and currently fighting with ups and downs of life and sugar

Hi I’m newly diagnosed 17 years old from India ………. I was diagnosed a month ago ……… Wen my mother noticed me that all the tym I remains in the kitchen and was eating something everytym …… Drinking evrytym ……… And also…… Remains in bathroom most of the tym……… Wen she forced me to give my blood sample……. I shouted……back on her……… But finally I gave it to the pathologist ……… At the evng wen the report was to be collected I was praying to god that my blood sugar should be normal,my blood sugar should be normal……… I asked the pathologist bout my report but he said that my blood sugar was 650mg/DL ……… My whole lyf stand stood in front of me for a minute ……… But then I remembered that my mother also gave blood sample for testing ……… So I became confident that I will not have diabetes……… But soon my nightmare came true …… I was diagnosed with type 1 diabetes……… I was not ready to inject insulin…… So we changed doctors-to-doctors for hearing something new……… But all had same answer with them I.e. “INSULIN” ……. Then I saw a specialist but he talked to me so rudely……. And written some tests to be done…… Like c-peptide , blood sugar: fasting,pp,random……. My fasting and pp reports came normal but c-peptide and random were unsatisfactory……… So I fought with him and ran away ………… And then I saw my family doctor he also sent my blood sample to a different lab ……. And now I have the only way to be cured I.e. “INSULIN” ……… My mother was crying at one corner…… My father was in anothr corner,and I ………… I was shokd and was not giving any response to anything……… Then we saw a doctor near us …… He gave me humalog 50/50 … Which reacted on me and I was admitted to a nearer hospital ……. The doctor in whose hospital I was admitted said that he will take me under his control and gave me humalog 25/75 …… And now wen I started feeling healthy …… It also reacted on me last nyt…… Today I am going to see my doctor …… Please wish me gud luck…… :slight_smile:

Dheer, be patient with yourself; you will get better and better at it. If you can get an insulin pump and afford the monthly supplies, it gives much better control. Talk to the doctor about it. Then you only take one type of insulin, Humalog, and control it by programming it; the pump company will train you on how to use it.

Thanks @davyboy for ur concern … Actually the pump is not available in my area that’s y my doc is saying to control it by MDI but its not controlling

Dheer,

Sorry to hear you have joined our club. I was diagnosed when I was 6 years old. It is a shocking realization to find yourself in this situation, as it was for me, too, back then. It is going to take a while to get things sorted out: how much insulin you need and the amount of food you need to cover that insulin, and vice versa. You need to find a specialist who works with diabetics. The procedure I underwent back in 1977 was getting on a diet that had prescribed carbohydrates (the part of food that turns into sugars - glucose, fructose…) that affect your blood sugar levels and then slowly adding insulin and testing sugars to see how much the insulin helped. Then slowly adding more until we figured out how much insulin I needed to cover a certain amount of insulin. That is the game. For me, I take 1 unit of Humalog for every 17g of carb I intake, but also take into account if I exercised (take a little less) or under stress (school exams, sad, anxiety) and take a little more. the blood testing and recording will help you figure this out so you can get pretty close to maintaining normal levels. But, understand, the body is very dynamic and you will be surprised every now and then, and sometimes not understand the cause of a low or high sugar count. Just have a can of coca-cola handy so if you end up with real low sugars, you can drink that to keep from going into an insulin convulsing reaction. I pretty much have a backpack with insulin, testing kit and food with me everywhere I go. I test 4-8 times a day. After a while, you’ll be testing and you won’t even care. It will be like changing clothes.

After time to get an idea of how much insulin you need to cover a certain amount of carbs, you can start to then experiment with different foods and see how they react (example: eating a bowl of rice alone will spike your sugar levels faster than a mix of rice and saag. The saag will slow the rice digestion and distribute the sugar intake over a longer time, allowing the insulin to ramp up with the sugar intake from the rice.

Exercise will also lower blood sugars. Stress will raise blood sugars. Managing stress will be a great benefit. I meditate to help that.

After some time to see how your body reacts to the insulin, the food you eat, your activity state, mental state, etc. you will eventually have the ability to manage your blood sugars and be able to live a life that normal people do, with just some additional maintenance. You will really become a pro at process control via blood sugar sampling.

Hang in there, Dheer!!! We all made it though this too. And so will you. Remember, you are not your body. Your body is just the vehicle for your spirit to learn the lessons you need to work out in this life. So work on adapting to the blood tests and insulin injections (I have been doing this for 40 years and I’ve done more in my life than most people!) And take heart in the fact that as bad as this seems right now, there are many other worse things that you DON’T have to deal with. Diabetes is at least manageable and researchers are getting close to fixing this issue so none of us will have to do another blood test and insulin injection in our daily lives in the future.

Hi Dheer,

If you can’t get a pump, get the PredictBGL app - it’s the next best thing. The pump does not give you better control - it is the Humalog/Novolog insulin used in it, and it’s ability to calculate a dose that gives you the better control.

Good luck!

Thanks all for ur support … @rkymtn thanks for ur guidance … And @datamystic thank u too… :slight_smile:

You should definitely get on a pump. I 've had T1 35 years. Patience is the most important thing. Good luck and watch those lows.

Hey Man,

First, sorry to hear about the diagnosis. Our daughter was diagnosed in January and I can totally relate to how incredibly overwhelming it all feels right now.

Second, this isn’t your fault! You didn’t do anything wrong to cause this. Our bodies are amazing miracles and for some reason your and Aspen’s (our daughter) pancreas isn’t working properly. It’s not your fault or your parents fault. But now you get to do your pancreas’s job from the outside.

I also understand that your treatment options may be different to what’s available in other parts of the world (I’m British living in the USA now). We have a lot of friends in the UK who have had to wait 5-10 years to get an insulin pump.

The good news is, like others have said, you will figure this out. Your feelings are completely normal.

You’re obviously a very smart guy. Your English is excellent! My encouragement would be for you to learn everything you can about Type 1 Diabetes. There are some excellent resources available. If you can, get your hands on one find a copy of Understanding Diabetes (it’s the book with the pink panther on the front). I think you will find it incredibly helpful. If you can’t let me know and I’ll connect with the Barbara Davis Center (who publish it) and get you a copy.

Also, try to connect with some other T1 diabetics in your area. We’ve found it so helpful to talk with others who are on the same journey.

If it helps you can watch some of our journey on YouTube. We created a video that shows Aspen’s diagnosis and documents some of our day to day life adjusting to Type 1. You can find us on YouTube at www.youtube.com/thedaletribe

I know this is a lot. There is so much to learn. Three months ago when everything was brand new people told us we would find a new normal. It takes a while (months not days), but it is true.

I’m praying you find a doctor you can have a good relationship with. That will help so much.

Thanks for being brave and reaching out. You are not alone!

Jon Dale in Colorado.

I’m sorry your diagnosis has been such a struggle. The others are right, though. It will take some time to learn how your body works, but then it will get easier. My treatment in '93 very similar to what RkyMtn described in '77. I was on a very strict diet and was checking my blood sugar 6-8 times/day. Now I only check about 4 times, but will check more often if I’m feeling sick. Basically, I agree with almost everything the others have written so far.

I want to stress, though, that you don’t need a pump to take care of yourself. I’ve noticed on this website not just a lot of pro-pump bias - which is understandable because it is an amazing piece of technology and has helped a lot of people - but also an attitude that if you’re not using a pump you’re not getting the best care. Which is definitely not true. I’ve been using multiple daily injections for 23 years and I’m doing just fine. My job requires a lot of physical activity and manual labor, so I worry about placement of a pump or a continuous glucose monitor. And my doctor has said that my blood sugar control is good enough that a pump wouldn’t improve it very much. So I’ve decided that a pump just isn’t right for me. If at some point you decide the pump might be right for you and it’s available, then go for it. But don’t feel bad because the pump isn’t available to you right now and please don’t feel like you’re going to get worse care just because you’re on MDI.

Keep talking to doctors, talking to others on this site, looking for other diabetics in your community. Those will be your best resources. But JDRF has several information packets that may be helpful. I’d start with the Adult Type 1 Toolkit (http://jdrf.org/wp-content/uploads/2013/02/AT1-toolkit.pdf). IT has a lot of useful information about diabetes and the different ways to manage it. There’s also a teen toolkit that you might find helpful (http://jdrf.org/wp-content/uploads/2013/10/JDRFTEENTOOLKIT.pdf), but it’s written more for the parents than for the teens. Maybe your mom would like to look it over. There’s also a Newly Diagnosed Adult Toolkit, but I haven’t been able to find it online. If you want that one, you can fill out this form (http://t1n-migration.10uplabs.com/resources/newly-diagnosed/t1d-toolkits/toolkit-request-form/?toolkitType=5) and JDRF will mail you a paper copy.

You can do this! And don’t forget we’re all here to help!

Dheer, good to see you found this group, sorry you had a reason to. I’ve learned a few things about Type 1 diabetes, since I just “celebrated”(?) my 60th anniversary with it last Saturday. Things will grow normal for you as you live with it for a while, measured in months.

A small caution for something already mentioned here, if you go low and need to drink (best answer) or eat something to raise your level DON’T overdo it, or you will go high for quite a while. It was mentioned to keep a can of Coca Cola handy, but if so don’t drink much of it. Myself if I go down to about 50 mg/dl I will drink 2 ounces of orange juice, but no more than that. This brings me back up to a reasonable level in a short time, my symptoms go away within 5 or 10 minutes normally. If I was working very hard just before that I will do a blood test again after 15 or 20 minutes to be sure I got it right.

You will learn what to do for almost any situation as you go, but never criticize yourself when you don’t get it right, just remember that your life is an experiment in a very complicated situation known as Type 1 diabetes.

Ted Quick in Ohio

Thank u all for ur support! Can u tell me what’s the price of the pump in ur country?

Dheer,
Pump prices in the USA are a bit hard to find, nobody seems to tell you even when you order one. I’ve been using insulin pumps for 23 years now, and pump prices are around $6000 for a starter kit. Infusion sets and cartridges (syringes) add perhaps $50 to $100 per month.

I also realized after I answered your post earlier today that I didn’t mention something from my experiences in the 1960s to 1970s. My endocrinologist had tried to get me on good control for 4 or 5 years, until he decided to try a radical treatment on me and a few other patients. This MAY help you, but it may hav no effect at all, but is worth considering.

He put me on 2 shots of medium speed insulin plus 2 pills (later capsules) of Phenformin, an pill usually only prescribed for Type 2. The insulin I took was Globin, but this is no longer available, at least in the USA. NPH is likely the only insulin that would be equivalent, but that needs to be explored, since I don’t keep up with new insulins. Phenformin was removed from the market in 1975, but was replaced by Metformin since then. This has been found to work in years since, though insulin pumps have taken over for most people.

I imagine your doctors have never heard of this, since it was always fairly rare, but it ended the 7 year long terror of my insulin treatment, and MIGHT do so for you too. Just be VERY careful, and if it doesn’t work for you fairly soon go back to your current treatment.
It only worked for a select few, and basically the pill represses the liver’s output of glycogen, which converts back to glucose on release, and the insulin takes care of what you eat.

Good luck i any case, hope this idea helps you.

Ted Quick in Ohio

Thank u @tedquick for informations you gave… :slight_smile:

Can anyone from you help me in getting a pump? Actually I can’t afford getting that and my doctor is continuously saying to switch on a pump please help if anybody can?

If anybody have an extra or an old pump not in use please donate?

Hello Dheer,

So many are wanting to help you - it must be confusing to read all of this.

  1. DO NOT take advise concerning your treatment from anyone except your endo. If you are still with a primary dr get
    yourself to a specialists (endo)

  2. Order or buy two helpful books to study and find answers:
    think like a pancreas, Gary Scheiner
    using insulin,by John Walsh

  3. MDI s can manage your DT1. Pumps work for some but not for others so use your energy to get the D under control with MDI at the present time.

  4. Find American Diabetics Association, Type 1 forum on the net. join

Dheer,
Replying for the 3rd time, I have an old Animas Ping insulin pump that I’m not using anymore. Should be able to send it to you with some infusion sets and cartridges, enough to get you started anyway. Trust you can get batteries for it, they’re “a” size long life batteries.

I tried looking up what would be involved sending it to you there, but found something saying that used equipment can’t be sent into your country, but can you check on that?

Ted Quick in Ohio

Srry @tedquick for a late reply … I slept earlier last nyt … I will go today and will chk for that and will get back to u … Just give me more 3 hours for checking … And again… Sorry for a late reply