I was diagnosed last January 6th, 2011 with diabetes at the age of 42, "probably type 2", my wife and I could not believe it.
I had been very physically active and in pretty good shape, racing mountain bikes competitively for 4 years, with quite a bit of success. My wife pushed the Endo to perform a GAD antibodies test to rule out type 1, it of course came back positive for type 1. A C-peptide test was also done and came back within the low end of normal.
I immediately cut out the simple carbs in my diet and of course quickly improved. My last four A1C have fluctuated from 5.2 to the latest being 5.9.
With my next to last Endo visit, I suggested that I was coming up one my one year anniversary, and was there a test we should do to see how the T1D was progressing. The Endo said “yeah that’s probably a good idea”, of course my confidence in the Dr. was already low now it was shaken to the core.
The Doc ordered another C-pep test for the one year mark, and it came back with a number 40% below last year’s number which now places me well beneath the normal range.
During the first 9 months of the diagnosis the Endo had me on two different Type 2 meds, I asked at each visit if I could discontinue there use but he insisted that they would help preserve the remaining Beta cells. I finally got sick and tired of feeling sick and tired and ceased the meds last September 5th. This of course doubled my efforts to control my T1D with proper diet and exercise, I was pleased to note that my daily BG’s improved slightly without the meds in my system.
The most frustrating part, other than the Endocrinologist, is the fact that I am so insulin sensitive that with no meds I can still record a blood glucose reading in the forties if I just change my strict diet by adding a mid morning omelet with cheese, green peppers and onions(more protein than normal?). I also can record a very high for me 175-200 by just having 1 cookie.
I consistently eat the same things, at the same time every day, excluding the weekends when I am at church during my normal lunch hour. My breakfast is the same with a measured cup of Multigrain Cheerios, ¾ cup of unsweetened Almond milk and a banana. My lunches are the same 4 days a week with a raw vegetable salad bar, including ¼ cup of egg salad with two single serve whole grain crackers. My dinners 7 days a week consist of a meat protein and vegetables, no starches or rice, ever. I eat no bread and my “desserts are normally Greek yogurt, cottage cheese with plain cinnamon or peanut butter on celery sticks, yes my diet is that strict. My mid morning snacks are most often 1 measured ounce of nuts, almonds, cashews or peanuts or such.
I am quite concerned as my C-peptide numbers continue down, I will be started on a long acting Insulin and I will begin experiencing Hypo’s Like I had this past Sunday, right as I was about to head out the door for church. It came on quite suddenly and I am grateful it happened while I was trying to change the battery in my garage door remote and could not figure out why I was struggling to complete such a simple task (I am an electronics tech). I did realize I needed to check myself, and while the shaking made it difficult to do I got it done then went and found some yogurt covered raisins and one little hard candy about 10 grams worth, this corrected the low quickly and I was able to drive myself to church safely.
I was home alone because my wife and son had already left for church before I was ready. I wonder if I should be pressing my Endo for a CGM as he most assuredly will feel as though I need to transition onto Insulin within the next two visits, 2-5 months. I would like to have had an alarm to let me know I was quickly dropping in BG’s, because I had just finished the omelet, and did not even think about going low after just eating!!.
I am just wondering if there are any other athletes who are late onset Type 1’s who have experienced the conditions I have, and how there Endo treated them? I am an avid cyclist, both on Mountain bikes and Road cycles. I ride 5-6 days a week, with the top riders in my area, I weigh 139 pounds and am 5’9”: inches tall. My BMI is 20.5 and I have no fat on me. I am frustrated, scared and depressed, I sometimes wish that this thing would just happen so I could adjust and battle this thing on solid footing. I hate not knowing what is going to happen next, and I want to just break down and cry sometimes.
I appreciate you guys letting me vent.