Hello! I am the mom of Lainey who was diagnosed 12/29/11 at the age of 19 months. We (mom, dad, sister 11 years old and sister 8 years old) have spent the past 14 months learning to cope with our new life. We've made friends with a few T1D families as well as connected with our local JDRF branch. Here are a few questions for the forum:
- Do any other moms work full time? I currently work full time and took a slight cut in pay to switch to a more flexible position. Seems most of the moms I meet work pt or stay home.
- How do other parents deal with the round the clock checks? Every night we follow the same routine - test, shots (Lantus and Humalog if needed) & snack between 8/9pm, stay up till 11pm/midnight to check (then correct or wake up to give snack), nap for 2-3 hours, get up and test at 2/3am, name for 2-3 hours then get up at 5:30am. Trying to function throughout the day is tough when you feel like your sleep deprived brain is mush! I am so scared I will mix up meds or make wrong calculations all due to sleep deprivation!!
- Does anyone else feel like they are loosing friends in their life? I am finding friends and family scared to death to be left alone with a diabetic toddler.
- A 2 year old is bad enough - but a diabetic toddler has been a nightmare. We have 2 older girls and we find dealing with this one has left us totally spent and exhausted.
- Has anyone had issues with their child being totally asymptomatic? Our Lainey can be happily sitting in group or playing quietly and when checked she is 450! The times she seems to be most cranky is when she is near her target of 150!
- Is anyone else frustrated that most programs for T1D kids are for ages 6+? The toddler population is totally ignored. Great - I get to wait 4 MORE YEARS before I can get weekend respite care or let her go to a camp of be an Ambassador???
- Anyone else stuck with medical daycare? Delaware law prohibits our child from attending any sort of care that does not include a RN or LPN etc.... So we have to go to a medical daycare. Why does my child who needs to be checked 2-3 times per day have to be forced into a facility where there are kids who are on respirators or are severely autistic or have serious development disabilities? How will she be prepared for preschool when most of her peers cannot even walk or breathe unassisted (though it makes me extremely appreciative of what these other parents have to deal with each and every day)?
Sorry but after a year I was hoping life would get easier! Ooh - last one - does anyone else hear my favorite phrase when you call your Endo to express concern that your child's average is close to 300, "Well, she is a Toddler and the little ones are tough to treat"!!???
Thanks for listening and any advice is appreciated. I am just beyond exhausted and tired of just trying to make it through day by day. I didn't mention the hubby is a police officer who works rotating shifts and daughter #2 is a severely Dyslexic (like we needed another challenge in our lives).