I was diagnosed with T1D in high school in 2009, and I went through a rebellious phase in college and had an A1C of 16% at one point.
I’ve been working really hard over the years and my most recent A1C (May) was 5.9%…
But I feel like trash ALL THE TIME! I currently do daily injections and wear a Freestyle Libre 14 day (I just got new insurance so I’m trying to switch to a more accurate CGM with an alert).
I think I’m highly sensitive to any change in my blood sugar. I’m aware of the negative impact having such a high A1C can have on the body, but it’s been years since then, and I’m worried I’m going to live the rest of my life feeling miserable.
I’ll have low symptoms, even when my BS is in range. Even as I type this out right now, I feel miserable even though my blood sugar is 111. Then when I’m high (210), I feel like every cell in my body is decaying (I know this sounds dramatic, but idk how else to explain it). I sometimes have a hard time doing something as simple as watching to because of how terrible I feel. I’m really struggling with having good numbers on paper and feeling terrible all the time.
I also lost my appetite. I was tested for gastropaesis, and the results came back negative. I feel nauseous most of the time and try to eat something small every 3 hours to level out my BS and stimulate my appetite (discussed with my endo).
Does anyone else experience this? Is anyone else highly sensitive to the slightest change in blood sugar? If so, how do you cope with it? Have you found any solutions to this?
So much of my day is spent feeling weak, drained, nauseous, and experiencing brain fog, that it’s really hard for me to have good days.
Apologies for the long post - thank you for reading! I don’t have any T1 diabetic friends, and I’m feeling really alone and frustrated. Clearly I’m leaving a lot out about my diabetes regimen, but I’m really curious if anyone struggles with not feeling well most days.