Midlife ups & downs with type 1 diabetes (41 years)

I guess my title pretty well sums it up! When I get upset my blood sugars go sky high!! Thing is I get upset easily but in the past I’ve always been able to control my emotions, but not anymore. I’m off of cymbalta (10 years) & now I’m on wellbutrium. I feel like I will go out of control!!

I have been experiencing the same thing. My endo put me on Prozac to raise my blood pressure to combat orthostatic hypotension, about 6 or 8 weeks after starting my moods started to get away from me. I am usually very patient and kind, but lately the smallest thing seems to send me right over the edge. I have been T1 for 27 years now and have also developed bad headaches, vision problems, confusion, stumbling, and memory problems so I had an MRI today of my head. I’m a bit nervous to hear the results…

I hope you can figure things out. How long have you been on Wellbutrin? Did you have a hard time when you quit the Cymbalta? I had major depression when I quit…

I have heard a lot that stress can cause bs to go up, and it does for me, but I hadn’t really thought about other emotions, except as they relate to stress.

I’ve had T1 for 30 years, and am 45, so I figure I am probably past my mid-life point (the last big report said life expectancy of 69), and it seems like things have gotten a lot more difficult to control in the last 6 months to one year. I started taking Victoza, but it is taking a REALLY long time to adjust.

Wondering if other people have found that after a “certain age(?)” things just become more challenging, even if not experiencing obvious complications?

I empathize…i am T!D for almost 46 years…(56 heading toward 57 this year)…i have had retinopathy around 23 years ago, treated and stable…have otherwise been pretty lucky until recently…i have peripheral neuropathy which was mild for a long time…but has started to get worse…not pain… but my legs feel heavy and i have issues when i exercise…i am a physician and as i look ahead i am contemplating other system failures and not encouraged by the loss of what i perceive to be function…what makes it hard is that being a T1D basically my whole life…i don’t know what “normal” should feel like…all we can do is do our best…hang in there and have the best ride we can have…

@roentgen @Dawn1974

Wow!! I feel like all of you! I can so relate! Going through stress will raise my BG 76-100 points in 10 minutes. There are life stresses and then like visiting with my doctors! I don’t have to eat to have highs!

I feel you, I’m a Type 1 for 24 years and just turned 40.

Every situation is diferent, and all I feel I can contribute is what has worked for me. I have not been taking any medication for the topic at hand for 24 months, added exercise and removed gluten from my diet to welcome a new baby - both of which have had a positive impact (still get the blues, but dramatically less often than when only on meds).

I suppose that thought this is not empirical or advice, sometimes refocusing on other activities and goals helps distract us from what often seems like a grim situation.

Stress definitely sends things haywire in of BG, I can almost pinpoint Monday status calls and plane trips just by looking at my charts (I’m a consultant who travels for work), similar reaction to your effects.

It helps to talk to people to hear that you are not alone and there are others who have similar experiences. Finding live T1 peers helps if nothing else than to learn who others in similar and sometimes tougher situations deal and teach what you may have learned (I bet you have techniques of abilities to cope that others may not be aware of).

My thoughts and prayers are with you to find solace and comfort, and I hope you take something from the thoughts, encouragement and comments others may post.

Yes, I can identify with the feeling of not knowing what normal is. I’m on the omni pod & love it. It has given me some peace of mind, but there’s always the adjusting of insulin.

Well I hope your mri was ok. I did make a change today & put my resignation in. I’ve worked 30 some years & ready to make a change. It will help eliminate some stress that I’ve dealt with. I’m fearful though of myself becoming stagnant at home so I’m going to make a to do list. Hopefully that will make me accountable. :slight_smile:

Well hang in there. I hope I get better because I put in my resignation today & hopefully that will eliminate the stress I feel. I don’t need extra stress - diabetes has its own. :slight_smile:

Hello to the group! I’m a 45 year type 1 and figured it’s time to join a group! I’m reading with a keen eye for now. Thank you for sharing!

Well I have been a T1D for 37 years and am 41 years old and can tell you all that I too have been through a tremendous amount of stress all of which have brought my BG high. I think the most important thing to remember is to keep things real with yourself and to have someone you can depend on to listen to your thoughts and feelings. I personally also feel that exercise is one of those free things that assist all humans in making life feel better. Whether I am working out to bring the sugar down or to just get out there to improve my mood, exercise has been one thing I have relied on for the past 10 years and it has worked! I hope the person who had the MRI gets good results…life is short friends, take heed in this moment and smile…YOU ARE NOT ALONE!!!

I am 40, been type 1 for almost 30 years. I have been frustrated over the past year with my highs and lows. I’ve always had a pretty easy time controlling my sugars, but not anymore and it is mentally, emotionally tough. I have always thought that the disease didn’t have control over my life, and it is difficult to feel that way anymore. Add three teenagers to the mix and…

Glad to hear of so many long-time T1’s. I am 72 years old,
and have T1 since I was 8 years old in 1951 (so 64 years
of shots). I had some laser treatment for retinopathy
within the past 10 years, but have been stable for several years.
I have never been in great control, my A1c’s range about
8.0. I am still working (although part-time now), and in general
feel OK. I suspect I am just lucky genetically (with the exception
of having diabetes). My mother lived to 98, her brother and father
lived to 96. I just want people to know one can last a long time
in spite of being diabetic.

I’d like to connect with Naomi since we share a similar time-line.
I also was diagnosed in 1950 at 8 years old. I’m hoping to be able to travel to Joslin Boston in 10 years to receive a 75 year medal. I’m doing well enough- yoga, walking, and healthy eating are my mainstays.
To all out there- Courage!!

We need to complain and grumble, T1DM is a drag. But let’s all not forget: Insulin has saved our lives!

It inspires me to hear long-term diabetics share. Thank you for the work and life you live. 45 years and counting.

I am also inspired by folks in the 45+ years w/ D range!! Well done!!

I wish there were a lot more stories about those of us who are “OK” - maybe not great, obviously not perfect - and that these stories were what was shared at diagnosis, and told to every care team member. I strongly believe it is the positive/proactive and whole person approach that has made a difference for me.

I’m also taking the suggestions about exercise to heart - thank you!

Just past 44 yrs. Jazzercise 3X a week and try to garden some. That is work! Try to stay positive. Belong to a Support Group of T1d who meet once a month for education as well as support. It really does make a difference as someone else mentioned. You are NOT alone. We exchange ideas on problems and commiserate. :slight_smile:

Im 36 and have been t1d for 24 years. I’ve been pretty lucky with no complications until 2 years ago. Now I feel like its all going down hill. I feel sick all the time, I’m tired all the time, and I’m really tired of people asking me if I’m taking care of myself. I decided to try to join a group or meet some people who can relate. I really feel like I’m out there on my own. And half the time I feel like I’m crazy because no one understands what I go through. So I guess I’m reaching out

Hello fellow T1D’s. I turned 50 a few months ago and in 4 months will have had this disease for 50 years. I’ve given birth to 4 healthy kids (25, 24, 18 and 16 now) I won’t say I’ve not been blessed but the struggles have been eye openers the older I get (not necessarily wiser). My sugar flux has gone on for so long, it’s become my normal. I relate to so much that I’ve read here. I’m brittle - OK. I get stressed even seeing my doctor because they want to fit me into one of their text books (can’t be done). Can’t eliminate stress and can’t/won’t stop living. So, I do the best I can, try to stay positive and stay connected with those that have chronic illnesses. Everybody’s got something health related, some worse than others. I HATE THIS DISEASE. Never been allowed to say that growing up and never been able to make my own care a priority. I fluffed it off like it was no big deal - so people thought “it was no big deal” until I’d crash. I was taught to get right up again with no time to recover. So as far as “midlife ups & downs”, I’m as even as I can be but definitely understand the frustration. Never been hospitalized from a high sugar level but definitely from lows. So your guess is as good as mine as to what my tombstone will say “she went down like a rock” or “she was high as a kite” - hehe. May that day not be too soon. Blessings to Us ALL