Mis diagnosis

Was anyone mis diagnosed when you were first diagnosed? I was diagnosed in 1984 at the age of 13. I was told I was Type 2 and started on a VERY strict diet and pills. A few months later I ended up in the hospital and was told I was Type 1 and started on insulin. I just wondered if this kind of thing is still going on. I think it is disgraceful that something like that happened. I know there are blood tests that could determine if a person is type 1 or 2.

i was first diagnoised with type 1 last year in july. but my doctor wasnt sure, he had a sneaking suspicion that i was a little different. . i ended up not needing insulin right away. i was rediagnoised in november when i saw the endocrinologist at a type 1.5 or LADA.

[quote user="Royce Earnest"]

Was anyone mis diagnosed when you were first diagnosed? I was diagnosed in 1984 at the age of 13. I was told I was Type 2 and started on a VERY strict diet and pills. A few months later I ended up in the hospital and was told I was Type 1 and started on insulin. I just wondered if this kind of thing is still going on. I think it is disgraceful that something like that happened. I know there are blood tests that could determine if a person is type 1 or 2.

[/quote]

I was also misdiagnosed with type 2 when I first started my journey with diabetes. It was 2007, 3 years ago on the 30th of this month. The nurse practicioner thought I had type 2 and put me on pills. The pills stopped working on me, my blood sugar levels were not where they supposed to be. I also got infections and my sores did not heal up right. Long story short my back started hurting me, bad, in October 2008. Within 2 weeks I could not move my legs. After they removed a cyst on my spine it was doubtful if I was ever gonna walk or do normal things again. There was an endocrinologist at the hospital where I was staying and ordered some blood and antibody tests on me. Sure enough, there was a clear diagnosis of type 1 diabetes and was put on insulin. I learned that I would have a honeymoon stage for months yet, but I am now 100% on insulin for type 1 diabetes and metformin for PCOS. Looks like the metformin is not working right and I had to increase my insulin dosage. Many folks when first diagnosed with diabetes were misdiagnosed as type 2. Go to diabetesselfmanagement.com for some articles on some people who are living with type 1 but was thought to be type 2 early in diagnosis.

I was not necessarily "misdiagnosed", but my family doctor sent me home saying I had the flu after I showed up at his office throwing up and looking pretty groggy. The next day in the ER, I was told my blood sugar was over 800!

I wan't misdiagnosed; I went into urgent care and  was dxed with type one, my sugar was over 300 and I had keytones.  But I WAS misinformed, they released me after rehydrating me and said that I could "eat what I wanted"...so I went home and had pizza.  The next day, I went to my NP, and then was sent to the ER--I spent a fabulous eight hours in the ER and they would not release me until I had given myself a shot of insulin. 

The first time I went to the ER I was diagnosed with "optical migraines"....I was having a hard time seeing (along with the other typical signs)... they referred me to an eye specialist and a neurologist. After a few weeks of not getting better I went to the pediatrician and they send me to the ER again where I found out I am T1!

Royce,

Yes, I was being treated for some type of infection for about 3 weeks before my primary doc figured it out.  I guess when your history is perfectly heathly and there is no family history either T1 isn't on the Doc's radar screen.   I remember my mom was irate w/ him at the time.  19 years later she has settled down though.

Jason

I was 7 when I was diagnosed so I don't remember too much about it but here goes what I do remember. I was very sick (of course) so I went to the doctor. My doctor was away for the week on vacation so I saw someone else. My mother had a sneaking suspicion that I had diabetes, since quite a number of kids around my age in school had been diagnosed Type 1. She asked the doctor if she it was Type 1 and the doctor said absolutely not. I was sent home with some medication and told to get some rest and I would feel better in a few days. After a few days I was back at the doctor, seeing my normal doctor, who promptly had me go to the hospital to get blood taken. An hour later my parents received a call at home telling me that I would need to go back to the hospital. I would say that qualifies as a misdiagnoses. 

I post on several diabetes sites and I have seen many people telling about being misdiagnosed. That is why it is so important to see an endocrinologist for the initial diagnosis and prescribed treatment. So many newly diagnosed diabetics have never heard of an endo. Many of them find out about endos when they join a diabetes site, like this one. How about the many millions of diabetics in the US who never join, or even lurk, on an online diabetes site? In many countries there do not seem to be any endos. Can you imagine how much misdiagnosing occurs there?