Thanks everyone for all of your support and guidance!
When my one year old daughter was diagnosed it was right at the start of the COVID-19 pandemic. It seemed everything was fast-tracked during this time, including education part. Medical staff, including parents were wanting to get get in and out.
My wife handled most of it, while I worked. I know its was extremely difficult for her as she had to learn all of this on her own. Hospitals simply wouldn’t allow anymore than one visitor during this time.
Ive been playing catch up ever since reading all the books sent home. I fully understand I:C ratios, carb counting, basil and bolus insulin and diet. I’ve also tried to communicate with my wife on everything she has learned.
Its hard to talk to many diabetics because they are relating from an adult perspective, not a 1 year, 21lb toddler. When I read advice about “basing if your insulin/pump is working by how you feel”, I want to pull my hair out… A toddler cant tell you how they feel.
Addtionally, Pre-bolus, isn’t even an option as you dont know how much they are going to eat. So your always way behind the curve. They may not eat anything, or they may only eat foods that most kids eat. Which isn’t always healthy, but a one year old is simply not going to sit and eat and ideal meal for diabetics, they rather starve. And my child will not eat if it comes down to that. But we are doing the best we can to find a medium where she will eat.
Breakfast: Milk, Unsweeted Cheerios, Sugar free protein bar or Peanut butter
Lunch: Milk, Peanut butter Sandwich, Greek Yogurt,
Snack: Zero Powerade, Nuts, Yogurt bites
Dinner: Milk, Grilled Cheese Sandwich, apple sauce, bacon
These are some examples, so I know this is not ideal, but I also need to make sure she is nourished. Otherwise she will hardly eat, thus bringing down her weight down and making her BS even harder to manage (esp lows).
Honestly, this process has taken a mental toll on me, harder than my wife it seems. And is now difficult for me eat and my physical health has been effected greatly. I keep looking at the receiver all the time. Hearing dexcom alarms all day and night. With 30% of the time, being false alarms. I think im about to go insane.
At first, we thought maybe just one of us should handle it, instead of “tag-teaming”, but that creates an additional set of problems. If one of us gets sick, the other needs to be fully aware of how to take care of their child. And there are so many other factors, you cant expect one spouse to be tied to their child 24/7.
Right now, medical staff are less attentive and resources are spread thinner. So Im reaching out to forums to help me. Its close to the next best thing. To have people going through the same problems to help. Because right now, its been a nightmare.