New Dad trying not to freak out

Charlie, and everyone else, you have this so right. Decades ago I learned, the hard way, that no one can “CONTROL Autoimmune diabetes” but that we can successfully manage our own diabetes so that it fits into our lifestyle. Yes, a lot of study, effort, trial-and-error but it can be done.

And @Charlie4801, as you say we each must do it ourselves and that no one else can manage our diabetes for us. What does make this DYI Project more successful is having [knowledgable] support from from those who love us and respect our efforts - and from professionals who truly know-their-stuff and are willing to guide us.

This is from a 13 year - long diabetic — Dorie’s post is the best, from much terrific advice.

I have kept a written log ( my dia-log:>))) all these years. Some days the record is well kept, others not so good. On one side of the notebook is the record – on the opposite, comments to myself — from pats on the back, to warning what not to do, to ideas. The part that is as important as recording the numbers is YOUR INTERPRETATION, e.g. if my number is high, and I know the piece of cake is responsible, I will remember to adjust.
If it is not clear, I think back and try to understand, to remember what might have caused it.
Also, for the last few years I am sufficiently knowledgeable to able to compensate a low with a snack and also a high, with insulin,bearing in mind how much I injected last and when it should peak. My endo suggested I do this years ago, but I never felt secure enough to try. The challenge is not to overcompensate in either direction.
Coping with diabetes is not easy, but then, what is?
Marina

1 Like

I have 2 sons with T1D. They were diagnosed 4 days apart at ages 7 and 13, with the 7 yo first. At the hospital they said “thank god it’s not your teenagers, because they are the WORST”. 4 days later, my teen was diagnosed. As many have stated, stay educated. Both of my boys are on Dexcom G6 and Omnipod Dash. If your insurance doesn’t cover it, FIGHT IT. We did, and we won! As for the teen issue, it will likely be a struggle. In general, they think they are invincible AND they want their parents to stay out of their business, two TERRIBLE qualities in a T1D. My kids were diagnosed 3+ years ago. My youngest is a T1D ambassador. My older one… not so much. BUT, while we still have to stay on top of him, his A1C has always been between 6.2 and 7.0, so it’s still possible to help an unruly teen stay healthy. I’d offer up my 16 yo as someone to talk to, but he refuses to talk to anyone about it. Maybe yours would benefit from that, though. There are many teen groups out there for T1Ds to socialize and support each other. Anyway, I know it seems like rambling, but it’s been a LONG 3 years, and yet my boys are doing OK.

Awe! It’s going to be okay! I think at the beginning it’s actually safer to be running slightly higher than lower. Keep in contact with your endocrinologist and slowly they will likely increase his insulin and his BG readings will come down.
This is a tough time but as each day goes by it will get easier. There will always be times of learning with this condition - I have had diabetes for 36 years and I still am learning and it is frustrating and it sometimes just really sucks still, but it’s part of life and we live and we learn and we thrive and we enjoy life as per usual. It’s a life changer yes, but that doesn’t have to be negative. You’ll get over this hump…until the next one, then you’ll get over that one. You have so much support out here. Just keep in touch and keep asking questions. And if you have a good dr, he/she will walk you through this. And its not a bad idea to seek out some counselling for you and especially your son. That’s my biggest piece of advice which your doctor probably has already mentioned. I’ll be thinking and praying for you and your family.

1 Like

Hello my son is 12 was diagnosed sept 11 at the er with a blood sugar of 786 :(. Starts insulin that night slowly and after a week in the hospital his levels were still at the 250-300 literally just a week ago his levels are a bit normal with some adjustments from his doctor … he’s only been a diabetic for a month and his endo has changed his chart about every week trying to find his medium and even though bs is 100-150 which is normal I was told don’t get settled just yet because this the honeymoon stage and it will fluctuate for about a year :confused: Patience is the key and it is not easy especially with a teen who’s moody and hungry

I can remember how upset my father was when I was diagnosed, relax , get him and you educated, a insulin pump and a cgm , will give him a good life , 40 years later I’m total fine !! Dont be afraid ot might be scary but 6months from now you will be getting it , I’ll pray for you

Hello. I’m sorry to hear if your son’s diagnosis. I just want to concur what some others have said and maybe add something if one else has.

First, I was diagnosed at 19 in 1977. I have been able to graduate college and work decent paying jobs and will be retiring soon. Your son will be just fine if he follows the plan fairly well. Work with him and help him when he needs it. He needs to be able to do it for himself. A diabetic has to their own doctor.

The thing I would add is even if he does stick to 100% to the plan, there will be problems from time to time. “Control” is an over used word in the medical and device manufacturers lexicon. It will never be 100%,

It’s not ideal, but let’s just thank our lucky stars were all weren’t born 150 years before we were or we would have all died young.

Hi. I see you’ve gotten some great advice so I’ll try and keep mine short. I’ve had T1D for 42 years and am fairly healthy. Being a teen and having T1D at the same time is very challenging. Most teens will get tires of all they hav to do to manage it. Stay on him and check his meter daily. Communicate closely w his Endo and go to as many educational classes ass possible ( he needs to go too). A cgm is a great start to help w management. The freestyle libre is fairly inexpensive. His hormones will change and this will affect his bs. My Endo told me a long time ago that everyone’s body goes through changes every 7 yrs so be ready because you’ll know notice that was was working for so long is no longer working. Insulin pumps are great for management. Many states have summer camps for T1D and I strongly recommend it. It helped me feel normal. And I learned so much and made great friends. Good luck.

It is a great encouragement to read all these replies and gives me hope that my son will soon be able to manage his BG at a near “normal” level. It will be 3 weeks tomorrow since he started insulin and we are seeing some downward movement in general, but still some pretty high numbers pop up. He does tell us when he gets a “low” reading in mid 100s (that’s his bottom end right now). He’s doing well checking and dosing and following doctors orders, so that us encouraging. He isn’t interested in reaching out to anyone about t1d (very private), but it’s so early and maybe he will make connections in the future. I want him to know He’s not alone or a freak" (that’s the way some teenagers talk). He’s a good kid and it tears at me that I can’t do more. Feeling helpless I guess. But you all are a blessing and I am greatful for this community.

puberty is the worst time his hormones will be all over the place

1 Like

Robert, you have had a lot of great responses. I’ll chime in for what it’s worth. My son was diagnosed sophomore year of college at age 20. He too lost 20-30 pounds in the process. He was / is big into working out, so he had to totally relearn how to train and diet. First step is build the team around him, which someone else mentioned. Endo doctor, diabetic specialist (including a phone in number for frequent questions especially early on, nutritionist, and psychologist). That plus good family support is real important. Then get organized around insurance, prescription drugs and medical supply houses for equipment. Next comes trial and error of meal planning, how much carbs he is comfortable dosing for, learning how to eat out when there is no nutritional guidance and getting into the routine. Then how to deal with unexplained periods of highs/lows due to a cold, flu, stress or who knows what. It’s a process that takes time. Everyone is different, but there is a competency that is reached. Although a lot of work it can be done. The tools to control are so much better today and advancements are coming every year. Hopefully we get to the point where Type 1 is a managed nuisance instead of the 24x7. Good luck and let the Forum know any time you need some feedback.

1 Like

Robert,

I’m new to the forum but we went through the same thing. Almost exactly.

My daughter was diagnosed Nov 13th, 2018. She was 13 years old. I work as a firefighter/EMT so I thought I had a leg up. I WAS SO WRONG.

We ran high in the 350-400 for about 4-5 months after diagnosis. Then tapered off a bit. We are almost a year into it and through multiple basal changes and the ratios for meal intake, we are just now “cruising” in the 150-220 range. I’m sure there will be many more changes. My daughter is very active (soccer, exercise, shooting sports, and anything outdoors.) She has a tough time getting the levels to always stay in the good range. She goes high with exercise so we try to adjust her meals accordingly.

This is a new experience, it was rough on us for a while. I wanted to change her diet to a low carb so bad but the DOC kept reassuring me that this was not necessary. Keep good communication with your diabetes educators, they have been the best resources for us.

Chris

1 Like

Chris,

My son is 13 and was diagnosed two days ago. He’s a junior firefighter and his dad is a firefighter. Dad has type 1 too. My son is coping but is shocked and devastated. I’m crying myself to sleep but never in front of him. Was your daughter in shock after diagnosis. How long before she felt mentally stronger?

2 Likes

Our son was diagnosed 9/20/19. He’s 8. I truly believe he’s going through stages of grief. So are my husband and I. Every new day brings new concerns. I’m still waiting for the acceptance stage.

I’ve been diagnosed for a little over 5 yrs now. I still have those random thoughts that this is not real! I struggle with the realization, sometimes daily!
I know it sounds stupid to say what I’ve said. It doesn’t mean that I don’t think it though.
It is really tough to comprehend that you have some disease or problem that if you screw up, the consequences can be fatal! But that is where we are at.
Understanding, comprehension and acceptance are three different concepts. Each play their own separate roles in this.
Time and reflection are our only recourse in this. Just hope that we don’t do anything to ourselves that can’t be reversed, because we refuse to accept reality.
It’s just plain hard to do. For some it comes easy, for others it’s still a daily struggle. Everyone around you has to do the same too! Not easy no matter how we react.

It looks like I’m a little late here, but I want to add my thoughts to the mix. First I’ll affirm what everybody’s been saying so far – work closely with your endo and diabetes educator, and you’ll get used to it in time.

As a teenager myself, though (18 now, diagnosed at 12), I just want to say this to parents: it is hard, and yes, @CoopsMom, I think I went through the stages of grief myself. It took several months to realize this terrible disease would NEVER go away, and I would have to deal with it till the day I die. But eventually I came to terms with that, and I realized that it doesn’t define who I am. Now it’s just part of life. So, anyway, parents, from my experience, the best thing you can do is just be there for them through it. My parents have been excellent (most of the time :slight_smile:) at being supportive without pushy. If blood sugars are running consistently high or low, and they aren’t doing anything about it, maybe say something, but please be gentle, because T1D is frustrating. And (yay teenager-ness!) it’s full of crazy hormones without adding lack of insulin to the mix. Realizing that I could be open to my parents about my frustrations and they wouldn’t immediately try to starting fixing my blood sugars and assuming they knew better than I did what my body was doing – that was a reassuring realization.

One more thing: insulin is a hormone that affects emotions just like all the others. I’ve realized that when I’m high for a while, I get just plain grumpy. Often when I’m low (or dropping), I’m lethargic and tired. Either way, it probably comes across as moody sometimes. So just be aware of that.

All right, I’m done now. Thanks for all the wisdom and honesty here!

I am a T1D and going high is something that tends to happen. If your son was diagnosed in Oct that means he is still in honeymoon stages. When coming out of honeymoon everything evens out for a while. Right now I would suggest changing insulin intake. If your son wants someone to help him through his you can have him contact me or even if your needing a little help. It’s nice to talk to other people with your disease it tends to help cope with it. @ viviann12056@gmail.com or if you want my # you can email me and I can give you that info

1 Like

It’s a always hard when you find out. My son is 23 years old. He was diagnosed at 16 years old. He works and just bought a house. I always worry about him. I call every day just to see how his sugar is. Just always be there for your child no matter how old they are.

1 Like

Awesome job getting a house at 23. Something to be proud of.

Thanks for the encouragement everyone. I’m feeling a little better about things, as my son is doing well (so far) managing this T1 thing on his own. He is very independent and only mentions his BG when something seems really out of whack. He went really low while snowboarding over Christmas but was able to correct and learned from that. He almost always has a daily high but nothing over 300 so I guess he’s managing well. I have nothing to compare. He just got a CGM last Friday and he seems happy with it so far. He is only 3 months diagnosed so I’m waiting for him to get pissed and go “off the rails” sometime, but maybe I’m wrong. I’ve already learned that diabetes is different for every person who lives it. So thanks for the words and advice, it is much appreciated.