It is a great encouragement to read all these replies and gives me hope that my son will soon be able to manage his BG at a near “normal” level. It will be 3 weeks tomorrow since he started insulin and we are seeing some downward movement in general, but still some pretty high numbers pop up. He does tell us when he gets a “low” reading in mid 100s (that’s his bottom end right now). He’s doing well checking and dosing and following doctors orders, so that us encouraging. He isn’t interested in reaching out to anyone about t1d (very private), but it’s so early and maybe he will make connections in the future. I want him to know He’s not alone or a freak" (that’s the way some teenagers talk). He’s a good kid and it tears at me that I can’t do more. Feeling helpless I guess. But you all are a blessing and I am greatful for this community.
puberty is the worst time his hormones will be all over the place
Robert, you have had a lot of great responses. I’ll chime in for what it’s worth. My son was diagnosed sophomore year of college at age 20. He too lost 20-30 pounds in the process. He was / is big into working out, so he had to totally relearn how to train and diet. First step is build the team around him, which someone else mentioned. Endo doctor, diabetic specialist (including a phone in number for frequent questions especially early on, nutritionist, and psychologist). That plus good family support is real important. Then get organized around insurance, prescription drugs and medical supply houses for equipment. Next comes trial and error of meal planning, how much carbs he is comfortable dosing for, learning how to eat out when there is no nutritional guidance and getting into the routine. Then how to deal with unexplained periods of highs/lows due to a cold, flu, stress or who knows what. It’s a process that takes time. Everyone is different, but there is a competency that is reached. Although a lot of work it can be done. The tools to control are so much better today and advancements are coming every year. Hopefully we get to the point where Type 1 is a managed nuisance instead of the 24x7. Good luck and let the Forum know any time you need some feedback.
I’m new to the forum but we went through the same thing. Almost exactly.
My daughter was diagnosed Nov 13th, 2018. She was 13 years old. I work as a firefighter/EMT so I thought I had a leg up. I WAS SO WRONG.
We ran high in the 350-400 for about 4-5 months after diagnosis. Then tapered off a bit. We are almost a year into it and through multiple basal changes and the ratios for meal intake, we are just now “cruising” in the 150-220 range. I’m sure there will be many more changes. My daughter is very active (soccer, exercise, shooting sports, and anything outdoors.) She has a tough time getting the levels to always stay in the good range. She goes high with exercise so we try to adjust her meals accordingly.
This is a new experience, it was rough on us for a while. I wanted to change her diet to a low carb so bad but the DOC kept reassuring me that this was not necessary. Keep good communication with your diabetes educators, they have been the best resources for us.