It’s been about 6 weeks since my daughter was diagnosed with Type 1. She spent her second birthday in DKA and it all still feels so surreal and impossible to actually manage. She’s a tough kid and is wearing a Dexcom and taking the injections really well. But we’re still working with her diabetes team on getting her insulin dosages right. This week has been all over the map - and I feel like we’re getting to the point where our questions about what to do are more nuanced and there aren’t always answers- just general guidelines. So listing a few questions - and welcome suggestions.
- What do you do when your two year old won’t drink juice or eat candy for her low at 2 am?
- Why on earth would she get 2.2 for ketones after being over 350 for like an hour, when on other occasions she was 0.2 after having multiple hours over several days over 300?
- How long does it take for ketones to be dangerous? (1 hour, 5 hours, days?)
- If we try dosing before a meal, but her BG goes down while I’m calculating - should I recalculate with the new BG? Or should I scrap it altogether and dose her after eating? Let’s say more than 10 mg/dL in 5 min. But this was like 30mg/dL less in 5 min - arrow down.
- Around 2 hours after lunch she dropped 40 mg/dL every 5 minutes, arrows down from like 247 down into low 100’s. So we freaked out and gave her juice. This brought her up to 125 for 20 min then she started dropping more slowly again. So we gave juice and she went up to 225. For reference at night if I give her juice it usually takes her from just under 70 to 350. So, is this likely her insulin kicking on - or would this be more related to her insulin dosages? And in these situations are you all actually waiting until they get below 70?
- How do you keep track of everything that’s going on to share with the doctor? I feel like every 24 hours is it’s own novel.
Sorry so long. Open to any suggestions - or even some free snack ideas. (And is 15 g really free for a toddler - bc that will send her through the roof)
Is it me or is it wild that there seem to be the same rules, products, etc for my 24 lb baby as for 200 lb adults?