My son Leo (turning 3 in May) was diagnosed with type 1 diabetes on December 29, 2008 -- just days after Christmas. We have a great doctor and a great group of CDE's but we are overwhelmed, sad, tired... you name it! Leo has been on a pump now for about two months and we are still struggling with managing his BG levels. He is still honeymooning, so we've had our share of lows. And have had plenty of highs as well recently (he is just getting over a cold). I am currently a stay at home mom and so fortunately have been able to focus pretty much all of my attention on learning all that I can. But it seems despite all my/our efforts, his numbers still are ALL over the place. The question that never leaves my mind is "Does it ever become predictable?" I mean will it always be like this (one day in the 300 or 400s and the next 46)? Also, Leo doesn't seem to have a sense of lows or highs just yet. And we see very few symptoms, though are starting to have some clues. Any idea at what age he might begin to have the self awareness and let us know on his own?
Leo is adjusting as well as can be expected. And his older brother (Noah - 5) has been as understanding as he can about all the extra attention given to Leo. But we find ourselves wondering if it will ever settle down -- even just for a bit -- or do we just need to accept that it will always be so up and down. We're checking his BG at least 10 times a day, and when we finally think we see a pattern, it changes completely. HELP! Any words of encouragment and wisdom would be greatly appreciated.
Oh, I should mention that in addition to diabetes, Leo was diagnosed at 6 months with hydrocephalus. We had JUST gotten to the point (two weeks before he was diagnosed with diabetes) where we felt like we might finally be comfortable enough to get a babysitter and have a night out. I can't ever imagine that happening now.