T1D since 1963. On Omnipod since I’m not actually sure when, early 2020? Somehow 2020 got tumultuous, memory-wise.
My endo - T1 30+ years herself - thinks what I am seeing the last 3-4 weeks can be blamed on gastroparesis. I always thought gastroparesis hurt. I have, if anything, been feeling better than usual.
Question #1: Can you have gastroparesis and feel great every day (stage whisper) if you don’t count that your blood sugar is constantly careening in unexpected directions?
And no stress. My normal state is often Stressed but not in the last month or so. First reason is a long story. But also I solved a problem I’ve been working on for ages, and I finally lost maybe my 16th and 17th pound since last winter by just walking and climbing stairs more all year. I’d been working on #16 all summer and #17 just left of its own accord.
I am not in a stressed zone. But my endo circled around to asking about stress 3 times. I guess this is Question 1a: Is gastroparesis so very much more common with stress (might it indicate that I am not feeling as unstressed as I think I am)?
Symptoms: This morning is more or less typical of most of the time (but not all):
- starting BG: 137,
- bolused appropriately for breakfast,
- ate bfast 15 minutes later - I meant to stop waiting 15 minutes but I am so not a morning person,
- BG started dropping… and kept dropping…
- 90 minutes after eating, BG was 99. DOWN nearly 40 points, not up at all.
- leveled off around 100 until about 2.5 hours after eating,
- but wasn’t up to my original starting BG until more than 3 hours after I ate.
- Took a brisk walk and my blood sugar CLIMBED about 50 points during it - I’m someone who usually drops more than that during a brisk walk.
- Didn’t start coming down again until I bolused for a late afternoon snack.
Question #2: Does that sound about right for gastroparesis, or could those symptoms ever be anything else? Blood sugars heading off in all unexpected directions? The one weird thing about talking to my endo was that she didn’t want herself to saying for sure “You have gastroparesis.” But then, it was a phone call.
My endo says gastroparesis doesn’t always manifest the same way. Question #3: Is that your experience?
She says: It might go away, it might slowly get worse, no way of predicting. Well, isn’t that wonderful. But is it your experience? That’s Question #4.
I was diagnosed with gastroparesis 25 or 30 years ago (and possibly that was the horrible ulcer I got during one gruesome terrible summer job in college). Or at least that’s what they said then. It was strictly the upper valve of my stomach and the symptoms were so different. Mainly, burning pain. Total change in diet, backache from sleeping propped up, and oh, the burning. So, Question #5: just how different can symptoms get???
I’ve also been experiencing occasional… ahem, what I’ll call profound belches. Deep, as in baritone or even bass (I sing alto), and coming from somewhere… just, abnormal. Question #6: Is belching a more? or less? common symptom? Or is it just coincidental and unrelated?
General Questions #7 through 100: Any advice for living with this? Seems like staying prepared for changes would have to be one, but can any advice be more specific?
I was already planning to stop waiting 15 minutes between bolus and eating, but at her advice I’m also going to extend the bolus for maybe 1.5 hours, to start, well see how it goes. I did that this evening for dinner and holy mackerel, that worked well. But I know I can’t expect reliability here.
I did see in a posting a year ago, @Hen51 suggested taking glucose tabs with water for faster effect and to try to get them past the problem into the bloodstream sooner. Thank you for that @Hen51, I know I’ll need that.
Just a few questions. So far. THANKS.