My 6-year-old was diagnosed on January 20th. I guess that means today marks three months. Lately he's been going low, particularly before lunch. We kept cutting the ratio to give less insulin, but he was still going low. Then this weekend we started no insulin after breakfast... still going into the 50's.
Talked to the endo nurse today, and she said that this could be related to his honeymoon. She suggested taking him off insulin entirely to see how he does. We talked about whether he could potentially have monogenic diabetes, not type 1. Anyway, we're trying a week off insulin (unless BG starts to spike).
I should be happy, right? For some reason I feel this knot in my stomach about it. Maybe I felt we adjusted, and now I'm concerned that there are more unknowns in the picture. I don't know. God knows that I wouldn't be feeling uneasy if I thought that this was the beginning of life without diabetes.
So many questions... is it possible he doesn't have diabetes? Does he have one of the more rare types that isn't type 1 or 2? Am I scared to let us feel "normal" lest the world come crashing down on us when the honeymoon ends? He had cookies a half hour ago, and his BG is now 157. That's good, right? Maybe I'm just scared to let my guard down. I'm sure some of you have been through this before. Any thoughts?