After five years of MDI, my 11 yr-old daughter just started on the Omnipod. First day and night were flawless. A couple of great days and nights here and there since. But overall, it’s been awfully rocky, including 3 early pod changes because they were clearly not working. One was never right, and we left it longer than we should have because we’re new to this and weren’t sure. The other two started out fine but later, her sugar went up (you know, as if she weren’t getting any insulin); we gave her a manual injection, which worked as expected, and gave her new pods. She’s been pumping less than three weeks now, changing every three days or sooner for the duds. Is this a normal failure rate? I’ll write off the one that was never inserted right, but what about the two that worked for a day or two and then apparently stopped working? Are we doing something wrong? She’s rotating her sites, pinching when she inserts, and there was nothing visibly wrong with this last one at all. (The first time, she said it hurt right from the beginning, though not a lot, but in hindsight, the medical team consensus is it was never right. The second time didn’t hurt, and worked well for awhile, but when she went inexplicably high and removed the old pod, her insertion site was red, irritated, and swollen. This one, in contrast to the prior two, didn’t hurt and looked fine, both; it just didn’t bring her sugar down despite three corrections (giving the first two almost two hours, and the third one an hour fifteen before concluding it wasn’t working and we needed to go to the pens), and checking the Dexcom display obsessively to make sure we didn’t over-correct. (So far so good there.)
Her endo is horribly non-responsive, and the nurse educator just doesn’t seem to know all that much. Clearly we need a new medical team, but in the meantime, is this what we can expect from the Omnipod? Is it likely user error? Just bad luck?