my daughter is 10 and was diagnosed in january. We got the omnipod in June and overall it is great - she loves the convenience and not injecting, However, I am increasingly frustrated with what seems like completely variable insulin action with it!
-there is a trend to much higher sugars on the 3rd day of the pump, though not 100% of the time.
-she usually is low the first 24 hours with a new pod, often I have to cut back her basal rate by 30-40% overnight or she will alarm low (but again, not EVERY time).
-this alone is frustrating since it is not predictable enough to have for instance, separate basal programs for each day of the pump, but I just end up constantly making adjustments, and we have frequent times where she just ends up in the 300-350 range despite higher temp basals and generous bolusing and takes forever to come down. but if I increase her basal then she ends up low after a new pump.
-most recent omnipod seemed fine (a bit low as usual) first 18hours, but then from noon day #2 on she was just 280-320 no matter what we did so I changed her pod early. and first night with it she was low 2x, but now last night she was 300 at 2am!!
Its driving me crazy. Her diet is not hugely variable and at any rate, with appropriate carb boluses I don’t think that what she is eating for dinner at 7pm will be causing the 2-3 AM sugars (whether high or low) to be SO variable.
I don’t know what answer I am looking for, mostly just venting because I feel like there is no way for me to get this managed. When we did MDI it seemed much more predictable, but she hated it and it completely restricted any sort of unplanned snacks and was much harder for a 10 year old. She does not want to switch pumps - she doesn’t want anything showing and so pump with tubing would not be acceptable to her.
I haven’t seen any trend based on the site used - we use her arms (2 sites) and her abdomen (4 different sites there). she is really thin without a lot of sub Q tissue, especially on the abdomen but there is not a trend where the arm is better.
Has anyone else had this happen?