My daughter (Caela) oldest was diagnosed at 5yrs old and is now 14 (her dad has Type 1 and was diagnosed at 13yrs. old). Caela has multiple diagnoses outside of diabetes (Celiac, POTS, and Hashimotto's), so she juggles much responsibility and emotional stress. She is taking a few days off from school to wear the CGM, so we can get some fasting data and make changes to her pump settings. Her A1C is steadily going up, mainly because we are both burnt out, and Caela has felt like giving up on it all. We are taking the next 5 days with a "boot camp" approach to regaining "control" (as much as possible) and sharpening up on skills related to carb counting and pump feature education.
We saw the diabetic nurse educator this week, and she recommended that Caela wear the CGM all the time. This idea is not going over well w/ Caela, and for now she has only agreed to wear it for the next 5 days, in order to gather data. I wondered how many teens out there are wearing the CGM regularly, and if so, was it a struggle?
I truly want to respect my daughters wishes, and allow her to make the ultimate decisions. However, it is a fine line at this age between parental support w/ decisions (diabetic and otherwise), and giving her room to make decisions. Right now, I feel like until my daughter is able to regain ownership and responsibility, it is my job as her mom to intercede w/ her diabetic care. That said, I would not enforce wearing the CGM if it causes her more psychological stress.
Just feel like I am floundering with moving forward, and a bit paralyzed by my daughters denial and feel the burn out, as well.
Thanks for listening to random thoughts and worries....