Thank you for your kind words. :) From what I've been learning about PCOS so far, it seems that a lot women don't show all or very many of the symptoms. For example, I mainly noticed that I've been gradually gaining weight, and that my periods were irregular and really painful, I've always had a hard time controlling my blood sugars, and I did have a history of ovarian cysts. However, I don't have a lot of the other symptoms like excess hair growth or breathing problems.
I had an experience similar to yours with the sudden pain. It was so bad I had to lay down on the floor for a minute lol. I later went to my OBGYN for it and she diagnosed me with ovarian cysts. That was years ago, so I wonder now how long I have been living with PCOS...
Another interesting thing I learned is that Type 1 Diabetic women are way more likely to have PCOS than non T1 women. I found a study by the Journal of Clinical Endocrinology and Metabolism, where the tested a group of T1 diabetic women for hyperandrogenism (too much testosterone, which causes the symptoms of PCOS) and also for full blown PCOS. In the group of T1 women, 39% had hyperandrogenism, and 19% had PCOS. A recent study done on nondiabetic women found about 6.5% of them with PCOS, so that is a big difference!
The study suggested that T1 Diabetic women are more likely to have PCOS because, as T1's, we use more insulin than non T1's in order to maintain tight BG control. This state of "hyperinsulinemia" causes the ovaries to produce more androgens, or male sex hormones. I'm not sure if this causes cysts, or what the next physiological steps are, but it appears that PCOS develops as a result of the hyperinsulinemia.
Knowing all of this, I'm more than a little annoyed that my doctor never had me tested for this before. I had to personally insist on being tested for it. It can be an extremely frustrating feeling, as you said, to feel that you're being so active with your care, but hormonal changes are just taking the reins and throwing your blood sugars off. Now, I'm not saying I think you have it, but if you are concerned about your menstrual cycle and how extremely it has been affecting your blood sugar, it might be worth it to ask your doctor to just run the test for PCOS just in case. It's one simple blood test (testosterone) that can be tagged onto your regular blood work. Since beginning treatment, I've seen a great positive change in the degree of control I have over my blood sugars. :)
Hope this helps and sorry for the looong post...I just can't help being long winded sometimes Lol!