I'm posting this to the larger community because I need to hear some "been there, done that myself", as well as from some parents who have worked through some similar issues with their children.
After over two months of mostly compliance, our 8-year old son has begun a quiet rebellion. He is choosing to skip meals and not eat to avoid the insulin injections. Obviously, this is not going to work for long because he's got to eat, but it also can't be good for managing his BS, and I suspect he might start sneaking food to avoid injections. It's not out of stubborness that he's doing this; he's not a stubborn, manipulative child. When he says "this is what I need" or "this is how I feel", it is the absolute truth. He hates having T1, he hates the testing, he hates the injections. He does not want diabetes, and keeps saying he wants to "be normal". I'm doing my best to support his emotional processing of this diagnosis, but find myself sometimes having to choose between his emotional wellbeing and his medical needs. I am not going to force him to do anything that he cannot emotionally tolerate, because he and I have to hang on to as much of a trusting relationship as possible if we're going to work through this together. I told him today that he didn't have to eat lunch and inject, and I wouldn't force him to eat or dose if he didn't want to, but that I had to test him every two hours so we could keep track of where is BS was. That was enough to refuel the emotional melt-down we were in the middle of. And, yes, he does understand that getting too high will make him sick, and we'll have to take him to the hospital, which is the worst of all fates for this kid who is terrified of doctors, hospitals and needles.
I talked to him several days ago about the possibility of an insulin pump, and he waivered back and forth between "that would be great" and "I don't want another invasion of my body". I went ahead and order the dummy Pod from OmiPod, which should get here in a couple of days, so he would have something concrete to associate with a pump, and so he could see exactly what it involves. Today he wanted me to go out and buy a pump "right now!" so he could avoid injections, and he doesn't understand why I can't just run out and buy a pump at the pharmacy, or that a pump will not make it all go away. (He has a learning disability that inhibits his receptive and expressive language ability, just to make things more challenging).
So, I guess what I need to know is, how long will this quiet rebellion last? After a brief spurt of non-compliance, at the age of 8, can we expect him to hop back on board the D-train? Or do we need to arrange some time with a diabetes counselor to help him through this? His next appointment is two weeks away...can we just see what happens until then, or call the endo or DE and get more specific advice?
Any and all input would be greatly appreciated.
Worried mom (is there any other kind on this site?)...