Looking for anyone who is T1D and also has polymyalgia rheumatica issues. I’m 68 years old and have been T1D for 54 of them. About a year ago I started noticing joint stiffness and muscular aches and pains. I was diagnosed with “frozen shoulder” and went through a lot of physical therapy with spotty results. I had a prednisone injection which eliminated the pains and stiffness but caused my blood glucose levels to go crazy and the pain relief only lasted about 2 weeks. I did manage complete the Ride to Cure La Crosse in August, but since then the aches and pains have gotten much worse. Finally a rheumatologist recommended I try prednisone in pill form in decreasing doses. After two weeks, my symptoms are gone, but I am having some issues with my glucose levels. It never gets extremely high, but I have had to increase bolus amounts to counteract the increase. I also am finding that I am getting lows in the middle of the night now.
I am wondering if anyone else has T1D and PMR and what their experiences have been. I am wondering if the positive effects will continue as I decrease the prednisone dosage over time. I am also concerned about the long-term use of prednisone.