It seems we have a lot similarities in our lives. I am a nurse and just recently started back for my BSN, although that is online but I so remember the days of clinicals.
My email is email@example.com if you want to reach out.
Hi Michelle, my daughter was diagnosed at 11 and 10 day before Halloween!! She cried because the pediatric nurse told her she couldn’t eat candy anymore!
As far as school I learned a lot the hard way!! I agree the biggest thing is the 504! Her middle school actually tried to tell me we didn’t need one, so sometimes you will have to fight for what you want and need! You will need to be an advocate for your child in the schools. I also made up packets for all the teachers with stuff like what highs and lows look like, what to do to treat a low if my child is unable to (I even put a little tube of the cake decorating icing in there). I found some really good information and forms on the JDRF website under schools (I think). They even have a section on 504’s.
Some of the stuff I adjusted to fit specifically to meet my daughters needs then kept it on a USB drive and printed it with any updates every year or whenever needed. Oh I would also include a picture of here, and I found a substitute teacher form they could use for when they needed to with all of her information.
At the beginning of the year, if I couldn’t personally give it to the teacher I would put it in their mailbox.
Sorry this is a so long. If I can do anything to help please let me know. We are all in this together.
Wow you really must be exhausted but food for you? Is he your only child ? I have two other ones, younger, and sometimes I feel like life is all about my T1D.
It definitely is peace of mind having the pump and dexcom…BUT keep in mind technology is great when it works! Dexcom falls out a lot on my son and there are brief periods where sometimes it just stops working. Do you mind if I ask a question…what is your son’s build? My son is extremely thin which makes finding spots for the dexcom and pump difficult. It can be painful because he has no meat on him.
I mean it when I say that I am here anytime you have a question or need someone to cry/vent/whatever! My friends are great and try to be supportive but if you are not living it you are not getting it.
Carter is at a new school as well. We just picked up his schedule Thursday. I’m going through the school’s email directory and emailing them this week. If you know the principle/principles email, I would email him and ask him to forward to all of your son’s teachers. We’re revising his 504 to meet his needs in middle school, but we can’t meet until August 27th so they are going to hand out his 504 from elementary which is a start but not good enough. We are blessed that his new school has a diabetic task force and almost all the teachers are trained. Substitutes are a different subject. I ask teachers to print the email and leave it for subs to read before classes start. I also include an updated picture on the front.
Michelle, My son was also diagnosed about a month ago, he is 13. I am worried as well about him going back to school. We have a meeting set up with the school nurse to get the 504 plan in place. Your Endocrinologist should have also given you a plan of care to give to the school to keep on file. My son eats whatever he wants just need to count the carbs to counter balance. Hang in there!
Thanks Kelly. I hope your son is handling everything well. My son has gotten into a state of mine where he doesn’t want to “waste his carbs” on something a little more decadent like a baked potato … or have chips or “regular” foods vs lower carb foods. He has his first visit with the endocrinologist next week and still have so many questions. We do have an appt with his school nurse next week also. Yay!! Good luck to your son this school year!!
Honestly it sounds like he’s got a good mindset around carbs. With almost 24 years of diabetes under my belt I can say that I’ve never had better blood sugars than when I eat low-carb. It can be difficult for some people to make the change, but if he’s willing to make the effort (which will keep his insulin dosages lower) he’s in for a much better high school experience than I had with my wild swinging blood sugars on high-carb.
My son is 16 and was diagnosed in February. He was a sophomore when he was diagnosed. He is very shy when it comes to taking about his t1d. We lucked out, the school set up a 504 right away and made it possible for him to use a small unused office to keep his stuff and check his BS (before G6). He carried snacks with him and the secretary for the office kept an eye on him, they do not have a nurse in his building. It actually all went very smooth.
I was a nervous wreck everyday and honestly still am most. Gym classes and sports were/are the worst, not to mention the emotions. I think this is a very tough age for diagnoses, (not that any age is great) they know what life used to be and just want it back to normal and the hormones are crazy. Kcbertorelli@gmail.com is my email if you would like to chat.
@Boymom Hi KC, and Welcome to the TypeOneNation JDRF Forum! I trust that you will find community here among people trying to live well when affected by T1D and members here will freely offer you tips to make the diabetes life more more understandable for you.
I’m not a “Lady” but seeing that your son was diagnosed close to the same age I was diagnosed, I’ll add my ‘half-cents’ worth. I’ll add that my diagnosis was 63 years ago last July 4th, and that I’ve led a full, active and productive life.
The last line is the “good” part and that at age and without the convenience of the awesome tools we now use [a blood sugar test took two days to get a reading] I rebelled and ignored sensible diabetes care for about ten years - I’m paying now for my foolishness.
The positive side, is that your son can live really well with your encouragement and some good strong knowledge of the diabetes management - yes, he will learn the delicate balance between food, activity and insulin. There is plenty of guidance available for him, especially a knowledgable [in TypeOne] Certified Diabetes Educator and as long as he knows his insulin sensitivity carb:insulin ratios and can do basic arithmetic calculations. His G6 is a really great tool as long as he understands what it is telling him and he has the willingness to try maintaining his BGL within a REASONABLE target range.
When he reads his Dexcom Clarity AGP report, the most important features are the Standard Deviation (SD), Coefficient of Variation (CV) and Time-in-Range (TIR). Look too at the ?very low" and recall what actions he took to bring him back in line and what may have been the cause. Yes, look at the “wild out of range” readings and think of what caused them and how to get better results next time.
Concentrate on the positive and learn from the negative. Remember that a number, be it a single BG reading or an HbA1c is just a marker to help him make any needed change.