Gina sent me a warning that the post below might set off a serious unkind reaction from people who might think I was talking about them. Gina, if this is not an accurate paraphrasing of your warning, please let me know so that I can fix what I wrote to better represent your words.
I am heeding the warning in one way, by I hope clarifying what my post below is about so that people are not hurt, angered, saddened, outraged, or otherwise experience a negative emotional reaction to my personal experience.
I AM NOT TALKING ABOUT ANY PERSON ON HERE IN ANY WAY IN THIS POST.
I DO NOT KNOW PEOPLE ON HERE LIKE THAT. I DON'T WANT TO OR LIKE HURTING PEOPLE'S FEELINGS, EVER.
IF YOU ARE OFFENDED OR ANGERED BY ANOTHER PERSON'S EXPERIENCE...
IF YOU TEND TO TAKE OTHER PEOPLE'S FEELINGS ABOUT SITUATIONS PERSONALLY, PLEASE DO NOT READ THIS POST. I HAVE BEEN WARNED THAT IT MAY OFFEND PEOPLE, AND I DO NOT WANT ANYONE TO HAVE HURT FEELINGS ABOUT THIS IN ANY FORM.
I AM TALKING ABOUT TWO PEOPLE IN MY TOWN. THEY LIVE IN MY TOWN AND GET ON MY LAST NERVE. THEY MISREPRESENT T1 BY HABIT!!!! IT DRIVES ME CRAZY, MAINLY BECAUSE IT IS PATENTLY UNJUST.
SO ARE WE AGREED, I HOPE AND PRAY, THAT PEOPLE WHO READ THIS AND RESPOND WILL DO SO IN THE SPIRIT OF FRIENDSHIP?
ARE WE ALSO AGREED THAT IF SOMEONE READING THIS HAS A TEMPER (LIKE I DON'T LOL) THAT HE OR SHE WILL NOT READ MY WORDS?
WHILE WE ARE AT IT...CAN WE AGREE TO BE NICE?
THAT HAVING BEEN SAID, HERE IS THE POST BELOW:
I AM TALKING ABOUT TWO PEOPLE THAT I INTERACT WITH IN MY TOWN. THIS POST IS NOT WRITTEN TO HURT, OFFEND, ANGER, EMBARRASS, ALIENATE ANY PARENT OF A TYPE 1 ON HERE OR ANY PERSON WITH T1 ON HERE.
Okay. I know that there are a lot of parents of T1 people on here. Please, any parent of a T1, try to understand that I am not talking about all people who have close ones w/T1, only the ones that never bothered to check their facts.
Parents of T1 are, mostly, heroes to me. T1 people are, too.
Having said that, I am frustrated and need to vent. There's a person around here who is afflicted with a child with T1. I say afflicted because she plays the martyr and moans about everything that her son goes through as if he did it on purpose and that it is all about diet and also, that whatever physical thing has happened (severe low blood sugar, severe high blood sugar) is something that he has actually done TO her. She at least admitted, for a second, that she didn't know what it was like to live as a T1 (and some people without T1, I think, could get pretty close to empathy about T1, especially the ones who bother to learn and don't take every fluctuation as personally as if it were a personal attack or a reflection of their ego). So she's talking about how she went to the dr w/her 17 year old son (I think he's been T1 for around two maybe three years now) and evidently immediately blamed his "bad results" on him. Talk about cruel. He's in the throes of adolescence, for God's sake! That whole never good enough thing...
It is hard for me, though, to get her experience as being a Mother with a Son Who Is T1. I think there's some residual anger because it wasn't always healthy the way some things were dealt with related to my T1 in my family. Seriously. If I wasn't crying after every doctor's visit because of the way the doctor was.......and I worked very hard back then when I was a kid. I worked too hard, actually.
The thing that bugs me is that she is playing the victim about her son and when she opens her mouth, out comes a series of very revealing false statements about what T1 actually is. She speaks false things about her son's "illness" and makes it sound as if he doesn't do anything at all and that it's all a matter of him being some sort of good or better person, and then he'd just be healthy all the time, but it is clear that she doesn't even know what healthy is, any more than she knows anything, really, about T1.
So she's one example of a half-expert. Everyone who listens to her believes her words as if they are the gospel truth, and it makes me insane because she is very ignorant and thoughtless. At some point, I wish she would open a book and read. It might make her a little less cruel to or exploitive of her son.
Another half expert that makes me insane is this woman who is T1 in my town. She's just as nice as she can be, but she talks about "abusing candy!" And how candy causes her to feel bad...and it's like when she was diagnosed, she listened to some doctor who knew absolutely nothing at all about T1 and just never bothered, ever, in the several decades since, to actually learn about her illness.
Both of these people talk as if they are experts, and people assume they are experts, and they spread misinformation and lies. And I think to myself that this is completely wrong...for people who should know better, who actually live this disease, to be so ignorant...it kills me. I think about the stress that Mother of Son has experienced, and I think about how much of it is actually just her using him.
People are human and bound to errors and mistakes, me as well as anybody. It just drives me nuts...month after month after month and on and on the half expertise and blathering continues...
Thank you to all T1 and all family members of T1 and all friends of T1 who really do live this disease. Without you, there'd be little hope of anyone with T1 having a full healthy life. Your effort and empathy is beyond price or valuing. It's life sustaining, life affirming, soul saving, life saving, loving, beautiful...thank you.