I am the parent of a recently diagnosed (6 weeks ago) type 1 child. I am interested in hearing feedback on resources others haved used to learn more about the honeymoon phase. If you have found helpful books or web sites can you please list them for me.
I hated the honeymoon phase to be honest with you. It felt so out of control -- not that it feels too much better now that we are out of it. There wasn't a lot of information out there -- I found our endocrinologist's office to be the best resource -- mostly the Diabetes Educator. My daughter just turned 10 and was diagnosed at the end of March. It rocked our world and I still deal with the grief every once in a while. She really just got out of the honeymoon phase about a month ago, so it lasted about 5 months. We kept thinking she was coming out because her numbers would skyrocket, but then she would have a patch of treatable lows -- very frustrating. However, the educator explained to us that there will always be something going on in her life that will make us feel like the numbers can't be controlled -- illness, excitement, other emotions, puberty, growth, etc. While this is somewhat disheartening, it did put things in perspective for us. The one thing I wished I would have checked into more is the research trials that are taking place -- they seem to be doing a lot of work around "saving" the islet cells that might still be functional during the honeymoon phase -- certainly too late for our kids, but worthwhile if it helps to find a cure down the road...
Hope everything is going ok for you with this new diagnosis. Don't be afraid to reach out for help and support!
I am the parent of a recently diagnosed (6 weeks ago) type 1 child. I am interested in hearing feedback on resources others haved used to learn more about the honeymoon phase. If you have found helpful books or web sites can you please list them for me.[/quote]
I haven't seen a focus book on honeymoon, really there isn't much to it except you make a little insulin. - if you are looking for a good insulin book I would suggest Think Like a Pancreas by Gary Scheiner http://www.amazon.com/Think-Like-Pancreas-Practical-Managing/dp/1569244367/ref=sr_1_2?ie=UTF8&s=books&qid=1255222960&sr=8-2
When I was first diagnosed my mom did everything she could to get us ready to treat diabetes. I went to the top childhood diabetes doctor in oregon and a one week seminar on diabetes and I'm still learning.
One thing stood out in particular and still does. The "honeymoon phase" is exactly that, a honeymoon. My child diabetic specialist's practice involved keeping his patients (children) in the honeymoon phase as long as possible. That 's the best treatment until the mechanical pancreas or cure and he wanted us all to be around when that day came along. With such a fragile disease you need every advantage you can get.
In the honeymoon phase the pancreas is still producing insulin when it needs to. Meaning, when you miss calculate food intake or insulin dosage your pancreas picks up the slack! When you leave the honeymoon phase control gets very hard sometimes it seems almost impossible. I really miss the easy honeymoon days.
The trick to staying in the honeymoon phase is keeping BG and diet in the best control possible so the insulin producing cells of the pancreas can last as long as possible.