Hi! New here. My son is 5. I feel like many others think I’m worrying too much, but I don’t think so. I could use some outside people letting me know if I’m over worried or if I’m going in the right direction by pushing for answers. I’ll try to recap our journey shortly. A couple years ago we were sent to ER because of constant drinking g and peeing (o my one kidney so they didn’t want to chance an appt taking extra time). All lab work was normal at the time. Fast forward to about 8 weeks ago (we have a new pediatrician now too). He was having episodes of shakiness and pounding heart which juice and/or food helped so thought nothing of it until he had a morning that he was tripping on the stairs and crawling to the bathroom to get the trash can to puke and couldn’t get up and looked white as a ghost. After some juice and food he felt much better but pounding headache for a while. Right then I knew we needed to see dr but it was the weekend so I wanted to wait til Monday if possible. I didn’t have a glucose meter so no clue what his sugar was. My mother in law has one so she came over in the evening and checked and his sugar was 225. It came down so we monitored til Monday. His sugar was normal at dr, no ketones, and lab work all was fine. A1c of 5.2. Tracked sugar a few days but dr said she was “comfortable with it,” and left a diagnosis of hyperglycemia in his chart and said to make sure he’s eating protein and having a snack before bed.
I tried to let it go but he still complained of not feeling well at times. I just know there’s something more going on with him. Peeing tons, not sleeping well. Something was off. So I just checked when he asked or seemed off or didn’t feel well. All different Readings but three of 165, 175, 215 concerned me. After asking dr, she’s referred us to endocrinologist who wants us to track for 5 days 4-5 times a day. During this 5 day check (on day 4 today) his sugar seems to climb all day and by the before dinner check he’s anywhere from 130 to 160. The highs of 225, 215, 165, 175 were all from about that time as well.
I’m just really trying to prepare myself I guess and have someone help me know that I’m not crazy pushing for answers with these blood sugar readings. Does this seem like a possible diabetes diagnosis? Could he be in a honeymoon phase? Is there any disease that’s just hyperglycemia?