As a parent who has just passed the one year mark - April 11 - I know there are things I should have done differently. I know I had become obsessed with the numbers and testing and maybe should have laid off it a bit more. I am however happy I asked tons of questions and found Juvenation. I am happy I did not rely on the heathcare team for all the answers. I pushed for a pump and it has help alot. I read everything I could get my hands on but that was both good and bad.
I realize that it did not matter what I read because it was not me who had diabetes. I could only relay the information and hoped it helped. My son is 15 and that is part of the issues we had with being obsessed with the numbers.
If I can offer anyone advice from my experience it would be three things
1. Find support - in your community, online or anyway or anywhere you can - contact JDRF for diabetes get aways, seminars etc.
2. Learn about diabetes - everything you can - ask questions - lots of them and to people who are living it. Use your healthcare team to bounce things off of but you are in the hotseat and its your health or your childs health. No one can do it better than you. Don't be timid or embarrased to ask your healthcare team anything and if you believe you need something then make it happen or make them give you a reason why it should not to your satisfaction. You will encounter gym teachers, school officials, teachers, and nurses who will tell you they totally understand and while some do many do not. Make sure they do.
3. Let the guilt go - guilt has no place in diabetes. No one knows how they got it and frankly even if you know at this point it does't matter. Give yourself a break - help others who have just been diagnosed - share you story.