As a frequent reader of this forum, I’ve decided to finally make an account! I’m hoping that you friendly folks might have some insight, shared experience, or could just brainstorm with me through this issue.
Some background: I was diagnosed with type 1 in 2000 at age 4. I spent my first 10 years on MDI, and then I used pumps from 2010-2020. Most of this time was spent on Medtronic pumps with a short foray into the Omnipod Dash from late 2019 to earlier this year when I went back on MDI.
The biggest reason I transitioned back to MDI from the pump was the PAIN I started experiencing with every single site. I had a blissfully pain-free 8+ years of pumping, but around summer 2019, I started noticing that a lot of my sites were bleeding right after insertion, and sometimes the site would be intensely painful and I’d have to take it out after 20 or 30 minutes.
The bleeding and pain began increasing in frequency to the point that on site change days, I regularly used at least 3, 4, or maybe even up to 5 or 6 infusion sets before I was able to find a site I could tolerate.
I decided to transition to the Omnipod in the hopes that the angled cannula might help, and it pretty much solved the bleeding problem and the pain of initial insertion. However, the sites would still become increasingly painful throughout the duration of wear, and I would often have to grimace my way through the entire 3 days.
I knew there were other options to try, like steel cannulas, but pumping was putting such an enormous toll on my mental health that I decided to switch back to MDI earlier this year. I now use the InPen and have nothing but positive things to say. I actually really like MDI for a variety of reasons, and though my time in range has been consistent to that of my pumping days, my A1Cs have improved from low 6s to my most recent 5.7%. I don’t miss the pump, but I do hope it will be an option for me in the future to try again if I want to, especially given the incredible closed loop systems available. However, my last months with a pump were so horrible that I worry whether it will be an option for me in the future.
Sometimes I wonder if my sites were just getting overused, but I have always been diligent about rotating sites all around my body and don’t see/feel significant areas of lumps or damaged skin. Sometimes, I think it might be an allergy issue. I have always used Humalog due to insurance coverage, though I don’t really notice any issues with injection sites with Humalog. I am skeptical about an adhesive allergy because I use the Dexcom G6 with no significant reactions and likewise have used many other adhesive diabetes devices including the Freestyle Libre.
Has anyone experienced something similar? I’ve seen posts about itchy sites, but nothing about sites that are consistently bleeding and intensely painful. If anyone else has experienced this, did you find out what caused it? Even if you haven’t experienced this, do you have any ideas re: cause, troubleshooting, or my future pumping prospects? I’ve discussed with my endo but aside from suggesting trying Novolog, she didn’t have any concrete ideas either. I’d really appreciate any insight! Thanks!